- Jan 12, 2008
- Nova Scotia
Hi Everyone, I'm new to this because my father was diagnosed with ALS. He has over the past year really failed and is now confined to bed. We had originally thought it was spinal stenosis but when we recently saw the orthopedic surg a further diagnosed was made. We are floored by it and currenlty he is 76 and having some trouble with swallowing, talking and breathing if his head is not in the right position. We wonder how far the disease has progressed and what stage he may be in. In Aug 2007 he was using a walker and getting around fairly well only occasionally needing help to get up. We bought a lift chair which helped a great deal. He now has no use on his left side and very minimal on the right. He needs to be spood fed all the time. His dignity is gone and he has 3-4 hours care from VON nurses per day. Does anyone have any ideas what time frame we are looking at here. He says he does not want any medical interventions and wanted a DNR signed by his wife. We are in agreement for now but not sure what the future holds. Hope somone can help!