ALSFRIEND
New member
- Joined
- Jun 16, 2006
- Messages
- 1
- Reason
- Friend was DX
- Country
- US
- State
- CA
- City
- Lakeport
Hi everyone...I'm new to this site. My best friend of 40 yrs has ALS and is currently in Hospice support care. I just need some emotional support as am having a difficult time with my feelings/emotions. Don't want to burden her with my pain because when she cries she cannot breathe. Mostly we laugh alot as only best friends can in times of tragedy. She is a good soul. I love her dearly.
I'm trying to understand this horrible disease which is slowly robbing her of life and independence. She is in an ALS wheelchair, has lost function in both legs, one arm, ability to talk, and almost ability to eat (swallow solid food). Lung capacity is now at 33%. She communicates with a voice synthesizer. She is hanging on to what little freedom she has, and I am simply there to support her and love her through it, along w/her family & friends.
I guess I just want to say how her incredible courage and ability to deal with this illness (with such grace & dignity) has touched my soul. I feel this way about any of you who are also living w/ALS. God bless, and I'd love to have someone(s) to talk to. I estimate she has about 2-3 months to live. My heart is breaking in two. Thanks for your support and love and friendship in advance.
(BTW, I chose the "Thumbs Up" Icon because that is her signal to me when I say or do something right, or understand something she has said---when not, I get the "International Sign of Discontent" (no, we have not lost our sense of humor, but sometimes it is strained). Her "Thumbs Up" to me also signifies she is doing OK.
Thanks for listening.
I'm trying to understand this horrible disease which is slowly robbing her of life and independence. She is in an ALS wheelchair, has lost function in both legs, one arm, ability to talk, and almost ability to eat (swallow solid food). Lung capacity is now at 33%. She communicates with a voice synthesizer. She is hanging on to what little freedom she has, and I am simply there to support her and love her through it, along w/her family & friends.
I guess I just want to say how her incredible courage and ability to deal with this illness (with such grace & dignity) has touched my soul. I feel this way about any of you who are also living w/ALS. God bless, and I'd love to have someone(s) to talk to. I estimate she has about 2-3 months to live. My heart is breaking in two. Thanks for your support and love and friendship in advance.
(BTW, I chose the "Thumbs Up" Icon because that is her signal to me when I say or do something right, or understand something she has said---when not, I get the "International Sign of Discontent" (no, we have not lost our sense of humor, but sometimes it is strained). Her "Thumbs Up" to me also signifies she is doing OK.
Thanks for listening.