DeansWife
Distinguished member
- Joined
- Oct 18, 2011
- Messages
- 197
- Diagnosis
- 08/2011
- Country
- US
- State
- AL
- City
- Fairhope
Hello, I'm new here although I've been reading posts for several months. My husband was finally given the diagnosis of ALS with Progressive Bulbar Palsy. Right now we are taking it a day at a time. He is still able to eat most foods though he does choke often. He undergoes E-stem therapy for the swallowing about every three months. Seems to help for several months so far. He can still walk but not long distances and has use of his hands/arms. He is a 30 year veteran so we have filed for VA comp. That is a waiting game. It's only been a month so I know it will be many more before we hear anything back. Prior to him being diagnosed, we traveled the US of A in a 40' motorhome for almost 6 years. This was our retirement dream. We have been blessed by being able to do this as it afforded us the opportunity to see and do many things that most people will only dream of doing. Of course we wished for more years but it wasn't meant to be. We are now back in a house. So, that's our story and we're stickin to it :-D
Just thought I'd say hi and to tell you that I've already gotten a lot of information from your posts and look forward to getting more and sharing what little I know. God Bless.
Just thought I'd say hi and to tell you that I've already gotten a lot of information from your posts and look forward to getting more and sharing what little I know. God Bless.