Hello everyone. I just found this forum and have read a bit and noted that newcomers seemed welcomed. I am facing a possible diagnosis of ALS though have had trouble getting health care providers to even care about giving me any diagnosis or hope of finding the cause of my issues. I have suggested ALS after doing some reading and knowing I have a strong family history of ALS. My paternal grandfather died of it many years ago. His brother's (my Great Uncle) cause of death was unknown due to religious issues that kept him from medical care but now 2 or 3 grandchildren of that relative have been diagnosed (all brothers).
I have had an MRI that was at first thought to be 'normal' but after personally viewing the pics with a radiologist it was discovered that there is indeed something there. Apparently the Dr that made the original request did not state accurately what they should look for. Anyway, two radiologists conferred and sent a new message to the original Dr with recommendations of further tests (CAT of my hips & pelvic region). I am waiting to hear from that Dr, as it has been barely one working day thus far since this all came about.
The Radiologists are considering several pretty serious diagnosis but are not saying what they might be until further tests are run but I was the one that brought up ALS, due to the heredity factor. I'm so tired of begging doctors to care about my issues that I feel are getting progressively worse! If anyone has anything to share about initial stages leading to their diagnosis I would be interested. Thank you for bearing with me.
I have had an MRI that was at first thought to be 'normal' but after personally viewing the pics with a radiologist it was discovered that there is indeed something there. Apparently the Dr that made the original request did not state accurately what they should look for. Anyway, two radiologists conferred and sent a new message to the original Dr with recommendations of further tests (CAT of my hips & pelvic region). I am waiting to hear from that Dr, as it has been barely one working day thus far since this all came about.
The Radiologists are considering several pretty serious diagnosis but are not saying what they might be until further tests are run but I was the one that brought up ALS, due to the heredity factor. I'm so tired of begging doctors to care about my issues that I feel are getting progressively worse! If anyone has anything to share about initial stages leading to their diagnosis I would be interested. Thank you for bearing with me.