clewbcg
Active member
- Joined
- Apr 9, 2008
- Messages
- 42
- Reason
- CALS
- Diagnosis
- 09/2006
- Country
- US
- State
- Utah
- City
- Heber City
Hi
My husband was diagnosed in September 2006, and we have been very lucky that his progression has been very slow. I feel guilty looking for support knowing that many people have such quick progressions. However, I would like to know how to deal with what seems like a long slow death by inches. My husband is starting to lose the strength and function in his hands on what seems like a weekly basis rather than a monthly one and neither of us anticipated that he might still be walking and talking but have no use of his hands. We have talked about and tried to make plans for the stages with a wheelchair and speech difficulties, but not this. We are in our 50's and have no family nearby. Our two children are far away and completely in denial. If anyone can help me deal with this, I would appreciate it greatly. We were so afraid of a quick progression, and now my husband is terrified of not being able to use his hands at all, but being around for a long time. He is very depressed. Help.
My husband was diagnosed in September 2006, and we have been very lucky that his progression has been very slow. I feel guilty looking for support knowing that many people have such quick progressions. However, I would like to know how to deal with what seems like a long slow death by inches. My husband is starting to lose the strength and function in his hands on what seems like a weekly basis rather than a monthly one and neither of us anticipated that he might still be walking and talking but have no use of his hands. We have talked about and tried to make plans for the stages with a wheelchair and speech difficulties, but not this. We are in our 50's and have no family nearby. Our two children are far away and completely in denial. If anyone can help me deal with this, I would appreciate it greatly. We were so afraid of a quick progression, and now my husband is terrified of not being able to use his hands at all, but being around for a long time. He is very depressed. Help.