smoochiegal
Active member
- Joined
- Jan 3, 2015
- Messages
- 87
- Reason
- Lost a loved one
- Diagnosis
- 08/2014
- Country
- CA
- State
- Ontario
- City
- Otonabee
Hi all,
I have been on this site for about 2 weeks but this is my first post. I have laughed and cried with many of the posts I have read. I have felt connections with so many of you on here as I suddenly feel like I am not alone with this crazy disease. I could have written some of the posts I have read. I cannot tell you how it feels to have people who KNOW what I am going through. I feel like now is the time that I need to reach out as I am taking a leave from work to care full time for my dear husband. I feel like I am losing my support group at work and need to fill that. I am sure I am at the right place.
A little bit about me. I have 2 incredible boys from a previous marriage. They are 12 and 15. My husband and I have been together for 7 years. We just got married in October after the diagnosis as I needed him to know that I was going to be by his side no matter what. (we had a surprise wedding at a baseball fundraiser that his work had organized for him ... best day ever!)
My husband is 45 and was diagnosed in August of 2014. He still has his mobility, but no use of his right arm and very little use of his left. His neck muscles no longer support his head and he told me yesterday that his tongue in starting to get weak. He does not want to have a PEG tube.
I am so looking forward to 'meeting' you all and learning from your experiences.
Cheryl
I have been on this site for about 2 weeks but this is my first post. I have laughed and cried with many of the posts I have read. I have felt connections with so many of you on here as I suddenly feel like I am not alone with this crazy disease. I could have written some of the posts I have read. I cannot tell you how it feels to have people who KNOW what I am going through. I feel like now is the time that I need to reach out as I am taking a leave from work to care full time for my dear husband. I feel like I am losing my support group at work and need to fill that. I am sure I am at the right place.
A little bit about me. I have 2 incredible boys from a previous marriage. They are 12 and 15. My husband and I have been together for 7 years. We just got married in October after the diagnosis as I needed him to know that I was going to be by his side no matter what. (we had a surprise wedding at a baseball fundraiser that his work had organized for him ... best day ever!)
My husband is 45 and was diagnosed in August of 2014. He still has his mobility, but no use of his right arm and very little use of his left. His neck muscles no longer support his head and he told me yesterday that his tongue in starting to get weak. He does not want to have a PEG tube.
I am so looking forward to 'meeting' you all and learning from your experiences.
Cheryl