- Feb 15, 2009
- Loved one DX
Hello everyone. I am new to the forum and have a few questions. My father was diagnosed with bulbar onset ALS about three years ago. For a long time he seemed to be holding his own and fighting the disease. He lost speech about 2 years ago (and I really miss his voice). Although he is not wheelchair bound, his muscle control is very poor. He had his drivers license taken away several months ago, which means that he relies on others to take him out. When I went to see him this weekend, he would not even let me take him out. He sleeps sitting up in a chair with his head on the table due to the fluid build up in his lungs. He is taking morphine sulfate as needed, and several other drugs. He is very quiet about what is going on and really doesn't want to talk about how he feels. My basic question revolves around the unknown. I am not sure what he is going through and how much more he can take. He told us that he is tired of fighting. What can we do to help make him more comfortable? I hate to see my father, who was a very active outdoorsman, suffering like this and just want to make sure we are doing all we can for him.