Mahealani
Active member
- Joined
- Nov 24, 2008
- Messages
- 56
- Reason
- PALS
- Diagnosis
- 09/2008
- Country
- US
- State
- HI
- City
- Hilo
Aloha:
First post for me. I was Dx in October after about 3 months of testing and I have a UCLA visit in January. I started with weakness in my right hand and now have weakness in my legs, but I am still walking, driving and managing to work part time. Last week I noticed tightness in the right side of my face by my mouth, it hasn't gone away but I don't notice any swallowing problems. It feels like it is progressing fast - I started Rilutek a couple of weeks ago with no side effects yet. I'm 51, have a 23 yr old son and a 16 yr. old daughter.
My family is going to Canada on a "long" planned vacation for Xmas and are very persistant about wanting me to go. Coming from Hawaii I am wondering how cold weather effects your muscles. Also how is traveling on the plane for those with weak legs? I'm worried that I will have difficulties. Any suggestions?
Mahealani
First post for me. I was Dx in October after about 3 months of testing and I have a UCLA visit in January. I started with weakness in my right hand and now have weakness in my legs, but I am still walking, driving and managing to work part time. Last week I noticed tightness in the right side of my face by my mouth, it hasn't gone away but I don't notice any swallowing problems. It feels like it is progressing fast - I started Rilutek a couple of weeks ago with no side effects yet. I'm 51, have a 23 yr old son and a 16 yr. old daughter.
My family is going to Canada on a "long" planned vacation for Xmas and are very persistant about wanting me to go. Coming from Hawaii I am wondering how cold weather effects your muscles. Also how is traveling on the plane for those with weak legs? I'm worried that I will have difficulties. Any suggestions?
Mahealani