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wmilo

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Joined
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209
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PALS
Diagnosis
10/2017
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State
PA
City
Zelienople
Hi, Folks. My name is Bill; I'm a new PALS, diagnosed in October, 2017, and also new to the forum. As I looked at some of the threads, I was impressed by the courage and compassion of the members here and wanted to introduce myself to the group.

My experience started with foot drop in the Spring of 2017, followed by ortho and neuro consults, EMG and nerve conduction studies, and the ALS diagnosis. I feel fortunate that I was diagnosed relatively quickly compared to what some others have had to go through.

I am using AFOs to help with the foot drop, and have found that hiking poles help when walking around the neighborhood, both with balance and by taking some strain off my legs. I can still do stairs, slowly, but can't carry much of anything up them.

I started Radicava infusions in early December and have been through five cycles, with minimal/no side effects. I am very grateful that my wife, who is my CALS, is able to administer the infusions at home which greatly reduces the time and effort required.

I identified with some recent posts from people who still question the diagnosis, even though they are far enough along with the disease to know it is ALS. I think in a way my mind is trying to protect me from all the harsh reality. As they say, "Denial is not just a river in Egypt." 8) I don't look forward to the unpleasant later stages, but as I mentioned, I'm inspired by the courage of the folks here.

Best to all,
Bill
 

ShiftKicker

Moderator
Joined
Mar 16, 2015
Messages
7,452
Reason
DX UMND/PLS
Diagnosis
06/2015
Country
CA
State
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City
Vancouver
Welcome, Bill.

Sorry to see you here for any reason, but a very warm welcome nonetheless. You will find this forum filled with information and shared experience- and also a great deal of support. The people here know what you are going through and can definitely empathize.

~Fiona
 

swalker

Very helpful member
Joined
Dec 11, 2014
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1,522
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DX MND
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State
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Bill, I am very sorry to have to welcome you here, but welcome nonetheless.

I am glad you have taken the first step in joining this little community more fully. I have found it to be a wonderful place of support and advice.

And, I sure understand what you are saying about denial:).

Steve
 

KimT

Extremely helpful member
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Joined
Nov 18, 2014
Messages
4,498
Reason
PALS
Diagnosis
08/2015
Country
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State
South
City
The Beach
Hi Bill,

I'm so glad you found us early on. The people and moderators on this forum are great. Please don't hesitate to ask any question. This forum is very active and you'll have lots of support.
 

KarenNWendyn

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Messages
3,933
Reason
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Diagnosis
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Country
US
State
OR
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Hi Bill and welcome to the foot drop club. I wish you slow progression and more time on your feet.
 

affected

Guru status reached
Joined
Apr 26, 2013
Messages
15,868
Reason
Lost a loved one
Diagnosis
05/2013
Country
OZ
State
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City
lala land
Welcome Bill, so glad you have made your first post so we can get to know you. Terribly sorry you are here with us, but it's the best place to be if that's where you have to be!
 

Clearwater AL

Extremely helpful member
Forum Supporter
Joined
Aug 28, 2013
Messages
2,611
Reason
PALS
Diagnosis
12/2018
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NC
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Get Real
Bill, thank you for sharing your descriptive "journey" (as we used to call it) that brought you here. Unfortunately... welcome.
 

Romeosc

Distinguished member
Joined
Jan 2, 2018
Messages
131
Reason
PALS
Diagnosis
11/2017
Country
US
State
TN
City
Memphis
Bill,

Welcome! Sorry you find yourself with so many others! DX is sad, but knowledge is the answer. Hope your advance is slow & easy!
 

chally

Very helpful member
Joined
Apr 23, 2015
Messages
1,265
Reason
PALS
Diagnosis
02/2015
Country
US
State
wv.
City
renick
Hey bill, thanks for the intro and letting us git to know ya some.

This forum is a valuable resource in learning about the nightmare.

No question is dumb only the one not asked.

Wishing ya slow progression, and all the mobility ya can muster,welcome
Chally
 

WendyWooG

Senior member
Joined
Jan 10, 2016
Messages
519
Reason
PALS
Diagnosis
07/2016
Country
Uk
State
Hertfordshire
City
Stevenage
hi Bill
Welcome to the forum.
Wendy
 

Angiegal

Distinguished member
Joined
Feb 15, 2017
Messages
309
Reason
PALS
Diagnosis
09/2015
Country
CA
State
Ontario
City
Kitchener
Hi Bill.
Welcome to the club!

Angie
 

Wilson2009

Distinguished member
Joined
May 4, 2017
Messages
273
Reason
PALS
Diagnosis
01/2017
Country
US
State
KS
City
Lenexa
Hi Bill,

Welcome to the forum. Sorry to hear about your diagnosis.

Dave
 
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