Rosaleen
New member
- Joined
- Mar 1, 2007
- Messages
- 4
- Reason
- Friend was DX
- Country
- CA
- State
- Ontario
- City
- Toronto
Good morning everyone,
I have just registered today on this forum, and am just saying hello. I was told about this forum and thought I would check it out. My dearest and closest friend of 30 years is being diagnosed with ALS/PLS - they have not said which she has. Many, many tests and blood work, which seems to par for the course after reading the many threads here. She has had such a rapid deterioration it is alarming. Since October 06 she has gone from a fully functional active woman to a wheelchair and not being able to do anything on her own. I am not sure what I am looking for here. I want to help my friend but seem to be a loss at what to do. I was phoning everyday but that seemed to much for her, so I backed off a bit. I visit every week, but those visits are getting harder and harder. She does not want to see anyone (she is only now just been prescribed anti-depressants). I want to help and be supportive. She does have a partner who does everything for her, home care is still being put in place, but they have not accepted any help from anyone. Any suggestions on how to be the best friend to her that I can. How to be supportive but not intruding. It is all so frustrating and hopeless.
I have just registered today on this forum, and am just saying hello. I was told about this forum and thought I would check it out. My dearest and closest friend of 30 years is being diagnosed with ALS/PLS - they have not said which she has. Many, many tests and blood work, which seems to par for the course after reading the many threads here. She has had such a rapid deterioration it is alarming. Since October 06 she has gone from a fully functional active woman to a wheelchair and not being able to do anything on her own. I am not sure what I am looking for here. I want to help my friend but seem to be a loss at what to do. I was phoning everyday but that seemed to much for her, so I backed off a bit. I visit every week, but those visits are getting harder and harder. She does not want to see anyone (she is only now just been prescribed anti-depressants). I want to help and be supportive. She does have a partner who does everything for her, home care is still being put in place, but they have not accepted any help from anyone. Any suggestions on how to be the best friend to her that I can. How to be supportive but not intruding. It is all so frustrating and hopeless.