Artist
New member
- Joined
- Apr 1, 2017
- Messages
- 2
- Reason
- PALS
- Diagnosis
- 12/2015
- Country
- US
- State
- NH
- City
- Manchester
Received mnd/als dx in dec/2015. Began in spring 2015 during tennis and bike ridingwith left foot drop and gait and balance problems and fatigue. After seeing multiple docs, went to neurologist, had EMG kand was told I had mnd. At that point was using cross country sticks to help with balance.
I am 72 and had been very active. Began taking L-serine in feb 2016 and worked up to 30mgs. In April, I fell and broke four bones in left dropfoot. Wore a boot and was non weight bearing til sept 2016. I was directed to get rid of crutches and needed a walker to ambulate.
Fast forward to now (march 2017), I still use a walker, but use wheelchair for outside and shopping trips. No longer drive or do laundry or cook due to muscle loss and weakness in both hands. Take modified Deanna protocol and the l-serine. Balance is gone and many days I feel like a weeble who wobbles and might fall down! Also have a wheelchair ramp and a used stair glide to get to 2nd floor.
I attend Bone Builders (weight bearing exercises) in the wheelchair once a week, have pool physical therapy once a week, and am trying to learn wheelchair tennis once a week.
Feel pretty isolated as I know no one else with this disease. Signed "artist"
I am 72 and had been very active. Began taking L-serine in feb 2016 and worked up to 30mgs. In April, I fell and broke four bones in left dropfoot. Wore a boot and was non weight bearing til sept 2016. I was directed to get rid of crutches and needed a walker to ambulate.
Fast forward to now (march 2017), I still use a walker, but use wheelchair for outside and shopping trips. No longer drive or do laundry or cook due to muscle loss and weakness in both hands. Take modified Deanna protocol and the l-serine. Balance is gone and many days I feel like a weeble who wobbles and might fall down! Also have a wheelchair ramp and a used stair glide to get to 2nd floor.
I attend Bone Builders (weight bearing exercises) in the wheelchair once a week, have pool physical therapy once a week, and am trying to learn wheelchair tennis once a week.
Feel pretty isolated as I know no one else with this disease. Signed "artist"