Zina Perry
Member
- Joined
- Jan 5, 2008
- Messages
- 29
- Reason
- Loved one DX
- Diagnosis
- 12/2007
- Country
- US
- State
- Texas
- City
- Rusk
Hi!
I am new to the group. My husband, Mike was diagnosed in December of 2007. The only symptoms that he has are the respiratory. He takes 4 breaths in 5 seconds. They told us he should be thinking about a trach soon. Has anyone else contacted ALS in the respiratory first? The doctor told me he did not think he would live long enough to develop any loss of his arms and legs. He has lost about 25 pounds and we are giving him Resource 2.0 and he is also taking Rilutek. I think the Rilutek has made him worse, but he hasn't been on it for a month. Also, he has hallucinations. It is usually people that he sees, but it is in the daytime and at night. I am planning on retiring so I can be with him because I do not think it is safe to leave him. I am planning on fighting this disease as well as the carcinoid cancer that he has. He is a fighter, but he is really going down fast. Any suggestions?
God Bless,
Zina Akin Perry
Rusk, Texas
I am new to the group. My husband, Mike was diagnosed in December of 2007. The only symptoms that he has are the respiratory. He takes 4 breaths in 5 seconds. They told us he should be thinking about a trach soon. Has anyone else contacted ALS in the respiratory first? The doctor told me he did not think he would live long enough to develop any loss of his arms and legs. He has lost about 25 pounds and we are giving him Resource 2.0 and he is also taking Rilutek. I think the Rilutek has made him worse, but he hasn't been on it for a month. Also, he has hallucinations. It is usually people that he sees, but it is in the daytime and at night. I am planning on retiring so I can be with him because I do not think it is safe to leave him. I am planning on fighting this disease as well as the carcinoid cancer that he has. He is a fighter, but he is really going down fast. Any suggestions?
God Bless,
Zina Akin Perry
Rusk, Texas