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MES123

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I'm new to this forum and as you can imagine don't want to be here.
I may be one of those Internet type doctors (not a md) who researches and researches then erroneously convinces myself it's ALS. I really hope so.
I'm here researching for my wife, who is unaware that her condition may be ALS. She has developed a slurred/tight speech over the last 9 to 10 months. No other symtoms. She has had 3 negative MRI's, has seen a Throat ear and nose doctor (all negative ) and a neurologist. The neurologist has said "it may not be neurological but wants more testing. MG, Lupus, Lymes and thyroiad have been eliminated. She has celiac disease and is on a gluten free diet. She had extensive dental work years ago and our new dentist has indicated the teeth may affect her speech but how much she can't say. I have researched Celiac Ataxi but get a sense it's nonsense. (comments welcome)
I'm a complete wreck, looking for answers, advice or just comments. Definitely looking for prays.
 

Dusty7

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Doesn't sound like ALS to me, but let the neuro finish his testing and have him give you an answer.
 

FSHolbrook

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I would definitely follow up with the neurologist as Dusty7 suggested. What you describe does not sound like ALS and it is definitely not what I have experienced.

Rick
 

MES123

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hey Dusty and Rick,Thanks for your comments . I know weren't doctors but if you don't mind telling me how your symtoms were different. I've don't some research and I can't see how someone can develop a speech disorder that's not neurological and in the absence of diseases already ruled out that it's not ALS. We have an appointment at Emory but not for 5 months. Also, any know or comments on Celiac Ataxi ? Thanks again. (God bless you)
 

Kosmoskatten

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From what I have learned Gluten/Celiac Ataxia is related to balance issues, and unsteady gait. I have read an article where celiac disease affected a patient in terms of loss of coordination, muscle fasics and brain fog as well. Celiac has been known to cause neuropathy-like symptoms in some patients. But I definately do not have any extensive knowledge about this.

Ill fitting dentures can affect your speech, but to get clarity your wife should see a dentist, and get a referral to a neurologist.
 

FSHolbrook

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I noticed muscle loss in my left hand and the walking I had foot drop. Then I went to see my GP.
 

Dusty7

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Bilateral foot drop, atrophy of left calf, inability to stand on heels or toes, inability to plantar flex right ankle.
 

MES123

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is a speech disorder for 10 months without any other symtoms typical for ALS?
 

MaxEidswick

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>is a speech disorder for 10 months without any other symtoms typical for ALS?

I am not sure was common symptoms are. It is hard to diagnose and there are few demographics other than 2x incidence in vets.

IMO, the best bet is to get a referral to a proper ALS clinic for a thorough diagnostic review. *and* stay off of sites like this that may fuel an anxiety fire.

JMO, FWIW,

Max
 
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