texgrl
Active member
- Joined
- Oct 23, 2007
- Messages
- 39
- Reason
- Loved one DX
- Country
- US
- State
- TX
- City
- Houston
my mother in law was diagnosed with ALS August 24 of this year......My husband and I moved her and my father in law in with us as soon as she was diagnosed. she is primarily wheelchair bound except for short trips back and forth to the bathroom with a walker. She has taken to using "sippee cups" because she is having problems holding things without dropping them.
I've noticed the past week or so she has been coughing more. She is a big vitamin person, and just a couple of days ago she started using a detox supplement, so i think part of what is going on with the increase of phlegm is partly the detox, but i think its also a progression of the disease.
She is also seeing a chiropractor who i think has made some outlandish claims that he can help her. She is not very accepting that she has this disease and is very angry at the medical profession in general right now, and just feels that no one will help her. She has rejected all help from the ALS Center in Houston, and is very adamant that she doesn't want any help with breathing ever, and that includes a bi-pap.
Yesterday evening, after going to the chiropractor, she was unable to get up from her chair to stand. her fasticulations were very bad in her legs---up until then, i had never witnessed them. She became very upset and was crying---this is the first time i've seen her cry as well. She refused to let any of us help her up, and said that every day she is weaker and weaker, and she is so angry. We were all at a loss as to what to do. She finally got angry enough and managed to get up.
She seems a little better today, at least as far as her spirits i think, but I'm at a loss.
does this sound like the disease is progressing? it does to me, but i don't know a whole lot. She was still walking unassisted in July, and now can only manage a few steps with the walker. i'm really scared about how fast things seem to be going. Is this fast? is her refusal of any help going to make this all go faster?
I've noticed the past week or so she has been coughing more. She is a big vitamin person, and just a couple of days ago she started using a detox supplement, so i think part of what is going on with the increase of phlegm is partly the detox, but i think its also a progression of the disease.
She is also seeing a chiropractor who i think has made some outlandish claims that he can help her. She is not very accepting that she has this disease and is very angry at the medical profession in general right now, and just feels that no one will help her. She has rejected all help from the ALS Center in Houston, and is very adamant that she doesn't want any help with breathing ever, and that includes a bi-pap.
Yesterday evening, after going to the chiropractor, she was unable to get up from her chair to stand. her fasticulations were very bad in her legs---up until then, i had never witnessed them. She became very upset and was crying---this is the first time i've seen her cry as well. She refused to let any of us help her up, and said that every day she is weaker and weaker, and she is so angry. We were all at a loss as to what to do. She finally got angry enough and managed to get up.
She seems a little better today, at least as far as her spirits i think, but I'm at a loss.
does this sound like the disease is progressing? it does to me, but i don't know a whole lot. She was still walking unassisted in July, and now can only manage a few steps with the walker. i'm really scared about how fast things seem to be going. Is this fast? is her refusal of any help going to make this all go faster?