As everyone knows my neurologist is sending me to a teaching hospital (UAB) with an ALS/EMG/NCV specialist but because the appointment is with the guy in charge of the department it isn't until December 23rd.
Baclofen has been helping a lot with the muscle cramps and I'm learning to pace myself. I have also been doing one of my absolute favorite things-decorating for Christmas and spending time with my kids and my nieces, nephews, parents, etc. and just trying very hard to distract myself.
But last night was the scariest night, not to mention the strangest. I was awakened not by a muscle cramp but by "jumping" over and over and along with the jumping was something that felt just like a shock, an electric type shock. These moved all over my body and one even made me cry. This lasted for several hours. I would drift back to sleep and another would happen and in between these were little ones.
Could this be a side effect of baclofen? WHY AM I SO WEIRD?
Any ideas?
Baclofen has been helping a lot with the muscle cramps and I'm learning to pace myself. I have also been doing one of my absolute favorite things-decorating for Christmas and spending time with my kids and my nieces, nephews, parents, etc. and just trying very hard to distract myself.
But last night was the scariest night, not to mention the strangest. I was awakened not by a muscle cramp but by "jumping" over and over and along with the jumping was something that felt just like a shock, an electric type shock. These moved all over my body and one even made me cry. This lasted for several hours. I would drift back to sleep and another would happen and in between these were little ones.
Could this be a side effect of baclofen? WHY AM I SO WEIRD?
Any ideas?
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