byrneka
New member
- Joined
- Sep 25, 2020
- Messages
- 3
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- PA
- City
- Philadelphia
Hi all,
I posted a while back about my symptoms and concerns that it was PLS. Unfortunately, it appears I am that very very rare 27 year old with PLS. Of course, nothing is official for a few years with repeat EMGs, but that is the running differential after a year of symptoms, months of testing, and worsening exams.
The main reason I am writing this is to get suggestions as to where to get a second opinion, which I plan to pursue. I live in Philadelphia and my care is currently done through Penn Medicine. I know there are a ton of great places out there (Mayo, John's Hopkins), but I was just hoping for some specific suggestions from those who have had positive experiences and some advice on how you went about getting an appointment.
Thanks so much!
I posted a while back about my symptoms and concerns that it was PLS. Unfortunately, it appears I am that very very rare 27 year old with PLS. Of course, nothing is official for a few years with repeat EMGs, but that is the running differential after a year of symptoms, months of testing, and worsening exams.
The main reason I am writing this is to get suggestions as to where to get a second opinion, which I plan to pursue. I live in Philadelphia and my care is currently done through Penn Medicine. I know there are a ton of great places out there (Mayo, John's Hopkins), but I was just hoping for some specific suggestions from those who have had positive experiences and some advice on how you went about getting an appointment.
Thanks so much!