kljack16
Active member
- Joined
- Sep 18, 2020
- Messages
- 46
- Reason
- Lost a loved one
- Diagnosis
- 08/2020
- Country
- US
- State
- MS
- City
- Starkville
Hi All,
This is my first post. My husband just received confirmation of the ALS diagnosis on August 31. As all of you know, it’s overwhelming and so much to process and so much to do.
We already have friends sending us articles and advice on nutrition and possible Chinese Herbal treatments. I’m not one for non-medical advice/treatments, but I also don’t want to forego something promising because of my ignorance or bias.
Do any of you know a reputable place to evaluate these things? We are in MS; so, right now, we don’t have doctors I trust (we got the official diagnosis from Johns Hopkins ALS clinic). We are headed back to JH in early October, and we will get a chance to ask a million questions, but I thought I would try here too.
One thing that was recommended from family but sounds crazy to me is Amyotrophy Convalescence Pill Series. Has anyone heard of this?
I appreciate all of you and I’m so sorry for everything y’all are going through.
Thank you,
This is my first post. My husband just received confirmation of the ALS diagnosis on August 31. As all of you know, it’s overwhelming and so much to process and so much to do.
We already have friends sending us articles and advice on nutrition and possible Chinese Herbal treatments. I’m not one for non-medical advice/treatments, but I also don’t want to forego something promising because of my ignorance or bias.
Do any of you know a reputable place to evaluate these things? We are in MS; so, right now, we don’t have doctors I trust (we got the official diagnosis from Johns Hopkins ALS clinic). We are headed back to JH in early October, and we will get a chance to ask a million questions, but I thought I would try here too.
One thing that was recommended from family but sounds crazy to me is Amyotrophy Convalescence Pill Series. Has anyone heard of this?
I appreciate all of you and I’m so sorry for everything y’all are going through.
Thank you,