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keith

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Joined
Mar 23, 2007
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17
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PALS
Country
US
State
Pennsylvania
City
West Alexander
hello to all, this is my first post though have been on the forum for a few months. I am one year unDX with symptoms 6months prior. My neuro said I had Inclusion Body Myocitis(ibm), but the muscle biopsy which is the definitive test for this came back unconclusive. he suggested that I might consider going to the Cleveland Clinic, as I am near Wheeling Wva. All the things I have read about IBM say nothing about muscle twitching as a symptom. these two disease (ibm and als) are very close in their appearance.
 

JenniLee

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Joined
Mar 19, 2007
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38
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PALS
Country
US
State
CT
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NORWICH
Hi Keith!

That waiting and wanting answers is awful. I wish I could help you...all I can do is remind you to stay positive. Keep us apprised of how you are doing. You'll be fine.

Jen
 
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