new one

[keith]

hello to all, this is my first post though have been on the forum for a few months. I am one year unDX with symptoms 6months prior. My neuro said I had Inclusion Body Myocitis(ibm), but the muscle biopsy which is the definitive test for this came back unconclusive. he suggested that I might consider going to the Cleveland Clinic, as I am near Wheeling Wva. All the things I have read about IBM say nothing about muscle twitching as a symptom. these two disease (ibm and als) are very close in their appearance.

 

[JenniLee]

Hi Keith!

That waiting and wanting answers is awful. I wish I could help you...all I can do is remind you to stay positive. Keep us apprised of how you are doing. You'll be fine.

Jen