Klj2018
New member
- Joined
- May 23, 2020
- Messages
- 1
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- CO
- City
- Brighton
Hi everyone, first of all thank you so much for taking the time to read this and hopefully respond. I have a 13 month old daughter and I haven’t been feeling well for the last 7 months. I am so worried that I am not going to be here to raise my baby.
This all started October 2019 with a weird dull ache in my upper back and around my rib cage. During this time I also started to have diarrhea and nausea with eating along with night sweats. I am really concerned about the night sweats as I’ve read others say that this was also one of their earliest symptoms. I began to get the same dull achy feeling in the back of my hamstrings. I also unintentionally lost 10lbs during the first three months of this. I had a colonoscopy, endoscopy, abdominal and chest pet/ct scan, a lumbar spine MRI, and lots of blood work done. All came back normal. I also had my gallbladder removed and had exploratory surgery, this was all normal as well. At this point I did not even think this could be a neurological problem. After surgery I continued to have the dull achy pains around my rib cage/back and hamstrings as well as in my arms. I also began to have muscle twitching through out my body. It is mostly in my feet and legs but I do also get the twitches in my abdomen, back, arms, shoulders, and eyelids. I am going on almost 4 months of the twitching. This is when I found out about ALS after googling my symptoms a couple weeks ago.
I have had no muscle atrophy that I can see but the weight loss makes me think that I actually do. I also can not gain back any of the weight even when eating in a calorie surplus, which is abnormal for me. The achy feeling is worst upon waking up or after physical activity. I don’t notice any weakness but I do notice that I have developed intolerance to exercise, I feel like total crap for a few days after doing a work out. I have also been abnormally tired to the point where I feel like I can’t wake up in the mornings which is also really unusual for me. One other thing I noticed was that I have had multiple pinched nerves in my back during this time. I have read a few stories on how others developed ALS and noticed a lot of similarities in my story. Does this sounds like ALS to you guys? I will be meeting with a neurologist this week.
This all started October 2019 with a weird dull ache in my upper back and around my rib cage. During this time I also started to have diarrhea and nausea with eating along with night sweats. I am really concerned about the night sweats as I’ve read others say that this was also one of their earliest symptoms. I began to get the same dull achy feeling in the back of my hamstrings. I also unintentionally lost 10lbs during the first three months of this. I had a colonoscopy, endoscopy, abdominal and chest pet/ct scan, a lumbar spine MRI, and lots of blood work done. All came back normal. I also had my gallbladder removed and had exploratory surgery, this was all normal as well. At this point I did not even think this could be a neurological problem. After surgery I continued to have the dull achy pains around my rib cage/back and hamstrings as well as in my arms. I also began to have muscle twitching through out my body. It is mostly in my feet and legs but I do also get the twitches in my abdomen, back, arms, shoulders, and eyelids. I am going on almost 4 months of the twitching. This is when I found out about ALS after googling my symptoms a couple weeks ago.
I have had no muscle atrophy that I can see but the weight loss makes me think that I actually do. I also can not gain back any of the weight even when eating in a calorie surplus, which is abnormal for me. The achy feeling is worst upon waking up or after physical activity. I don’t notice any weakness but I do notice that I have developed intolerance to exercise, I feel like total crap for a few days after doing a work out. I have also been abnormally tired to the point where I feel like I can’t wake up in the mornings which is also really unusual for me. One other thing I noticed was that I have had multiple pinched nerves in my back during this time. I have read a few stories on how others developed ALS and noticed a lot of similarities in my story. Does this sounds like ALS to you guys? I will be meeting with a neurologist this week.