Hreal85
Member
- Joined
- Jan 19, 2021
- Messages
- 10
- Reason
- CALS
- Diagnosis
- 01/2021
- Country
- US
- State
- MA
- City
- Weymouth
Hi
My dad who is 61 years old was diagnosed with MND today. He saw a neuro specialist at MGH in Boston after having two abnormal EMGs one in his right arm and the other in his left leg both done in the past month.
He first noticed his symptoms last December 2019, he couldn’t pick up a quarter with his right hand and over this last year it’s progressed with difficulty writing and buttoning up clothes but the rest of his arm is fine. And he can still write and cut food up he just has to go slower. Also around the same time that he started noticing the hand issue,he was having Charlie horse cramps around his abdomen/chest and sometimes his calf. He also will notice twitches in his abdomen and right hand. Otherwise he is doing fine no pain or gait issues or weakness anywhere else, nothing in the legs even with the abnormal EMG result.
The doctor said it might be a MDS that is slowly progressing. I guess I’m looking to see if anyone else had a similar experience. I know everyone is different as far as how they progress but has anyone found that there are periods were its slow then fast with regards to symptoms? Also how long from when someone was diagnosed with a MND did you actually get a more specific condition like ALS? He is starting Riluzole twice a day.
Thank you for reading.
My dad who is 61 years old was diagnosed with MND today. He saw a neuro specialist at MGH in Boston after having two abnormal EMGs one in his right arm and the other in his left leg both done in the past month.
He first noticed his symptoms last December 2019, he couldn’t pick up a quarter with his right hand and over this last year it’s progressed with difficulty writing and buttoning up clothes but the rest of his arm is fine. And he can still write and cut food up he just has to go slower. Also around the same time that he started noticing the hand issue,he was having Charlie horse cramps around his abdomen/chest and sometimes his calf. He also will notice twitches in his abdomen and right hand. Otherwise he is doing fine no pain or gait issues or weakness anywhere else, nothing in the legs even with the abnormal EMG result.
The doctor said it might be a MDS that is slowly progressing. I guess I’m looking to see if anyone else had a similar experience. I know everyone is different as far as how they progress but has anyone found that there are periods were its slow then fast with regards to symptoms? Also how long from when someone was diagnosed with a MND did you actually get a more specific condition like ALS? He is starting Riluzole twice a day.
Thank you for reading.