New Member

[bhg]

Hello. I’m a leg gal (i.e lower limb onset). I was diagnosed a year ago, but the first symptom was more than four years ago, when, after a fall, my swollen ankle didn’t heal right. Turned out to be a drop foot. I went from walking with a cane, to getting a brace, a walker and finally a wheelchair and a Jazzy power chair. PLS was suggested early on. After a over a dozen blood tests and 5 MRIs, a year ago a third EMG showed signs that it was probably ALS and I was officially transfer to our local ALS Clinic, diagnosis “a variant of ALS”.

About a month ago I felt it going into my left arm. That’s when I began searching for more information and found the forum.

I’m 75. My husband, 83, has been a wonderful help, a grab bar here, potty chair there….. as the disease progressed. Maybe it’s old age, but, I’m beginning to accept what is happening. I’ve had a really good life.

I’m the curious type, always wanting to learn more, so am glad I found you guys.

Betty

 

[Buckhorn]

Hello Betty. Welcome to the forum. I'm glad you found it/us. There are very helpful people here who will answer your questions as best they can. Overall, a very supportive group.

 

[lgelb]

Welcome, Betty. Glad you appear to be progressing slowly. We're glad you found us, too!

Best,
Laurie

 

[Angiegal]

Hi Betty.
Super folks here. Welcome aboard.

Angie

 

[KimT]

Hi Betty,
So glad you found us. The group here is exceptional. They are so helpful.

 

[affected]

Sorry to welcome you to the family, but you will find so much support and help here.

 

[KarenNWendyn]

Welcome fellow leg gal. Not only are the people here wonderful, but the site is also very informative and educational.

 

[Firefighter58]

Hi Betty I tried to email that info you wanted, I don't think it went through, if not let me know and I will post it here.

Al

 

[soonerwife]

Welcome Betty! Sorry to hear about your dx. You have found a great place for support.

 

[bhg]

Yes, Al, it did go through. Have just responded. Many thanks. Betty

 

[LizF]

Hi, Betty
Just wanted to welcome another Elizabeth and say you've found a great knowledgeable, supportive place. I'm a leg gal as well, with left arm weakness starting now too.
My progression is faster than yours, and I'm delighted for you that yours is slower.
And I love your attitude!

Cheers,
Liz

 

[chally]

Welcome Betty, this forum can help with a lot of guestions so post often.

 

[Statius@]

Welcome, Betty. My wife (an Elizabeth always called Betty) and now CALS was born not long after you. As many have said you'll find much of value here.

Ed

 

[Jocalyn8]

Welcome to the family! This forum is great for tips and tricks , and somedays a good chuckle,

Cheers,
Jocalyn8

 

[frankb]

Hi, Betty. Hope we can be of help in our common journey. Was a couple of years younger than you when diagnosed but still hanging in and have just entered my eighth year post-diagnosis. Let's prove to the world that seniors can hang in with the best ! !