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bhg

Forum Supporter
Member
Joined
Sep 25, 2017
Messages
18
Reason
PALS
Diagnosis
09/2016
Country
US
State
California
City
Cupertino
Hello. I’m a leg gal (i.e lower limb onset). I was diagnosed a year ago, but the first symptom was more than four years ago, when, after a fall, my swollen ankle didn’t heal right. Turned out to be a drop foot. I went from walking with a cane, to getting a brace, a walker and finally a wheelchair and a Jazzy power chair. PLS was suggested early on. After a over a dozen blood tests and 5 MRIs, a year ago a third EMG showed signs that it was probably ALS and I was officially transfer to our local ALS Clinic, diagnosis “a variant of ALS”.

About a month ago I felt it going into my left arm. That’s when I began searching for more information and found the forum.

I’m 75. My husband, 83, has been a wonderful help, a grab bar here, potty chair there….. as the disease progressed. Maybe it’s old age, but, I’m beginning to accept what is happening. I’ve had a really good life.

I’m the curious type, always wanting to learn more, so am glad I found you guys.

Betty
 

Buckhorn

Senior member
Joined
Jan 3, 2016
Messages
725
Reason
Lost a loved one
Diagnosis
12/2015
Country
US
State
PA
City
Small town
Hello Betty. Welcome to the forum. I'm glad you found it/us. There are very helpful people here who will answer your questions as best they can. Overall, a very supportive group.
 
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lgelb

Forum Supporter
Moderator
Joined
Nov 5, 2009
Messages
8,163
Reason
Lost a loved one
Diagnosis
00/0000
Country
US
State
WA
City
Seattle
Welcome, Betty. Glad you appear to be progressing slowly. We're glad you found us, too!

Best,
Laurie
 
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Angiegal

Distinguished member
Joined
Feb 15, 2017
Messages
301
Reason
PALS
Diagnosis
09/2015
Country
CA
State
Ontario
City
Kitchener
Hi Betty.
Super folks here. Welcome aboard.

Angie
 
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KimT

Forum Supporter
Extremely helpful member
Joined
Nov 18, 2014
Messages
3,694
Reason
PALS
Diagnosis
08/2015
Country
US
State
South
City
The Beach
Hi Betty,
So glad you found us. The group here is exceptional. They are so helpful.
 
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affected

Guru status reached
Joined
Apr 26, 2013
Messages
12,258
Reason
Lost a loved one
Diagnosis
05/2013
Country
OZ
State
AU
City
lala land
Sorry to welcome you to the family, but you will find so much support and help here.
 
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KarenNWendyn

Forum Supporter
Moderator
Joined
Jul 29, 2017
Messages
3,424
Reason
PALS
Diagnosis
07/2017
Country
US
State
OR
City
Southern Oregon
Welcome fellow leg gal. Not only are the people here wonderful, but the site is also very informative and educational.
 
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Firefighter58

Senior member
Joined
Jun 21, 2016
Messages
552
Reason
PALS
Diagnosis
05/2014
Country
CA
State
ON
City
Oakville
Hi Betty I tried to email that info you wanted, I don't think it went through, if not let me know and I will post it here.

Al
 

soonerwife

Very helpful member
Joined
Mar 16, 2016
Messages
1,565
Reason
Lost a loved one
Diagnosis
10/2015
Country
US
State
OK
City
Cleveland
Welcome Betty! Sorry to hear about your dx. You have found a great place for support.
 

bhg

Forum Supporter
Member
Joined
Sep 25, 2017
Messages
18
Reason
PALS
Diagnosis
09/2016
Country
US
State
California
City
Cupertino
Yes, Al, it did go through. Have just responded. Many thanks. Betty
 

LizF

Active member
Joined
Jun 16, 2016
Messages
63
Reason
PALS
Diagnosis
06/2016
Country
CA
State
BC
City
Victoria
Hi, Betty
Just wanted to welcome another Elizabeth :) and say you've found a great knowledgeable, supportive place. I'm a leg gal as well, with left arm weakness starting now too.
My progression is faster than yours, and I'm delighted for you that yours is slower.
And I love your attitude!

Cheers,
Liz
 
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chally

Very helpful member
Joined
Apr 23, 2015
Messages
1,255
Reason
PALS
Diagnosis
02/2015
Country
US
State
wv.
City
renick
Welcome Betty, this forum can help with a lot of guestions so post often.
 
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[email protected]

Distinguished member
Joined
Jan 3, 2016
Messages
224
Reason
PALS
Diagnosis
11/2015
Country
US
State
Iowa
City
Iowa City
Welcome, Betty. My wife (an Elizabeth always called Betty) and now CALS was born not long after you. As many have said you'll find much of value here.

Ed
 
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Jocalyn8

Active member
Joined
Jun 26, 2016
Messages
86
Reason
PALS
Diagnosis
10/2015
Country
us
State
north carolina
City
Charlotte
Welcome to the family! This forum is great for tips and tricks , and somedays a good chuckle,

Cheers,
Jocalyn8
 
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frankb

Senior member
Joined
Jun 8, 2011
Messages
543
Reason
PALS
Diagnosis
10/2010
Country
US
State
Georgia
City
Sandy Springs
Hi, Betty. Hope we can be of help in our common journey. Was a couple of years younger than you when diagnosed but still hanging in and have just entered my eighth year post-diagnosis. Let's prove to the world that seniors can hang in with the best ! !
 
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