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lmg1135

New member
Joined
Mar 6, 2012
Messages
1
Reason
Loved one DX
Country
US
State
Illinois
City
Glenview
Hi everyone.

I'm new to this site but unfortunately I'm not new to ALS. My father is currently battling the disease and last year I lost a friend to it as well.
In an attempt to work on my own grief, I've started a blog all about my journey during my father's battle.

I know that ALS sometimes feels like a very lonely disease and family members can often feel like no one else understands. I'm hoping that my blog can let people know the reality of ALS and for those of us living it, let us know that we are not alone.

Prayers to you all,
Lisa
 

Carrie C

New member
Joined
Mar 9, 2012
Messages
4
Reason
CALS
Diagnosis
07/2011
Country
US
State
MA
City
Georgetown
Hi Lisa,
I just joined the forum because I have no local support groups in my area. I know the feeling of loneliness. Friends and family don't see what we go through. When they visit, my husband is washed, dressed, sitting up in a chair, but they don't know what it took to get him there. I am so glad to be the caregiver, but it is truly hard work. I think I understand the reality.

Best,
Carrie
 

cervus

Senior member
Joined
Mar 18, 2011
Messages
923
Reason
Lost a loved one
Diagnosis
11/2010
Country
CA
State
AB
City
Leduc County
Hi Lisa and Carrie. Sorry you're both here. It is hard work. If people don't understand, explain it as best you can. There are good, caring, kind people out there, and on this forum. Take care both of you. Yasmin
 

rachelg

Distinguished member
Joined
Apr 14, 2009
Messages
226
Diagnosis
05/2009
Country
UK
State
Somerset
City
Yeovil
Hello Lisa and Carrie. You are very welcome here and will find lots of support from wonderful people
 

momap53

Very helpful member
Joined
Jul 2, 2011
Messages
1,640
Reason
PALS
Diagnosis
05/2011
Country
US
State
GA
City
EGA
Lisa, thanks so much for sharing your experiences.
 
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