New Member says hello

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Carol Weir

New member
Joined
May 15, 2003
Messages
1
Hi everyone, I am a new member. My husband was diagnosed with ALS March 2000 at age 45. We have two daughters 18 and 20. Would like to hear from other caregivers for support etc. We live in a small community of 1000 people. My husband is the first ever ALS patient in this area. No support group, we are sort of in this alone, what we know about ALS we learned quickly on our own. It's been quite a ride and we are helping each other throught this with the help of God and our family.
 

gloria

New member
Joined
Jul 14, 2010
Messages
7
Diagnosis
10/2008
Country
CA
State
ontario
hi carol just wanted to let you know your not alone my boyfriend was 47 when we found out he has als we also live in a small place with no support groups. i know its hard but know there is someone here that understands what your going through.
 

minnesota

Distinguished member
Joined
Mar 7, 2010
Messages
189
Country
US
State
MN
Hi Carol,

Welcome to the forum. Great place for support and answers to many, many questions. My hubby was 46 when he was Dx a year ago Feb. I hope you'll find great support here! Hang in there, we are all just a click away!
 

peter57

Distinguished member
Joined
Jun 21, 2009
Messages
429
Reason
DX UMND/PLS
Diagnosis
10/2008
Country
AUS
State
S.A.
Welcome to the forum gloria and Minnesota.

Unfortunatly this is a very old thread started by Carol in 2003.
That was her only posting and she hasnt been here since a few days after posting, so i guess she wont see your postings.

But welcome to the forum again.

cheers
Peter
 

Laurie Staller

Active member
Joined
Jul 8, 2010
Messages
48
Reason
Loved one DX
Diagnosis
07/2009
Country
CA
State
ontario
Hi Carol....welcome to the forum. I am relatively new here as well. My sister has had Als since 2003. She is now 47. She is in denial, so it's been difficult for her husband and myself(caregivers) as we can't be open with her about progression, treatments, etc. She just doesn't want to talk about any of it. That is why we can't get her any other support other than ourselves. I find this forum to be very helpful. The members really care and are on the same journey as you and your family. It doesn't take long for someone to respond to your questions and worries...they are all very knowledgeable. All the best....and God Bless.....Laurie Staller XO
 

stephie

Distinguished member
Joined
Mar 28, 2008
Messages
117
Reason
CALS
Diagnosis
01/2007
Country
US
State
mn
Welcome, Carol. I'm sorry about your husband. My husband was diagnosed 3 1/2 years ago at age 39. He has had a pretty typical progression and the disease is quite advanced. I hope you find some good information and a place to connect with other CALs here!
Stephanie
 

sadiemae

Very helpful member
Joined
Sep 20, 2009
Messages
2,397
Reason
Lost a loved one
Diagnosis
09/2009
Country
US
State
NV
Carol posted this in 2003.
 

sbbaber

Member
Joined
Jan 26, 2010
Messages
20
Reason
Loved one DX
Diagnosis
12/2009
Country
US
State
ky
Hi my husband was diagnosed in dec- 2009 - Doc told him he has had it for 11-12 years was blamed on diabetese. but been rough haul but u will get loat oa answers on here this people are awesome.
 
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