gbrown
Active member
- Joined
- Jun 13, 2008
- Messages
- 77
- Reason
- PALS
- Diagnosis
- 07/2006
- Country
- US
- State
- Virginia
- City
- Bassett
I started reading this forum a couple of weeks ago and like it better than any I've read. I started having ALS symptoms in the summer of 01' and was finally diagnosed with ALS by Dr. James Caress at Wake Forest University Medical Center in Winston Salem, NC, in July 06'. I worked until August 07' and retired after my speech got so people had trouble understanding me. I am now on Medicare Disability.
My disease is very slow progressing, but it does get a little worse each year. With the help of my loving wife and caregiver (bless her), we designed a physical therapy program that I can use every day and we modified the inside of our house to accomodate what I need. I have also started using some supplements to help me from reading about them on forums like this. I use a BiPap each day and a Cough Assist machine occasionally. I also use a respiratory muscle builder inhaler which has built up my lung capacity 13 % since October.
I go to the WFU/ALS clinic every three months and am scheduled for another one in July. Hopefully my lung capacity will still be building. I am still able to walk inside the house with the aid of a walker. Other times I use a power chair which is a great help.
Everybody please keep posting and helping each other and maybe we'll be able to beat this dreaded disease.
Gordon Brown
Bassett VA USA
My disease is very slow progressing, but it does get a little worse each year. With the help of my loving wife and caregiver (bless her), we designed a physical therapy program that I can use every day and we modified the inside of our house to accomodate what I need. I have also started using some supplements to help me from reading about them on forums like this. I use a BiPap each day and a Cough Assist machine occasionally. I also use a respiratory muscle builder inhaler which has built up my lung capacity 13 % since October.
I go to the WFU/ALS clinic every three months and am scheduled for another one in July. Hopefully my lung capacity will still be building. I am still able to walk inside the house with the aid of a walker. Other times I use a power chair which is a great help.
Everybody please keep posting and helping each other and maybe we'll be able to beat this dreaded disease.
Gordon Brown
Bassett VA USA