shh
New member
- Joined
- May 2, 2007
- Messages
- 4
- Reason
- Loved one DX
- Country
- US
- State
- virginia
- City
- dry fork
I have recently joined this forum and I am grateful for the postings that I have read. My mother was diagnosed at Christmas. She refuses to go the an ALS center or a MS center to hear about what to expect. Instead she is going to an alternative medicine doctor who is taking her money and giving her iv's of "super imuno" vitamins and most recently, she had an iv port put in so the doctor could give her phospholipid therapy. She gets worse every day.
She cannot walk at all. Her leg strength is gone and she has no strength in her back either. Her right arm is becoming useless and her voice is raspy. After she eats she says her esophagus hurts for a long time. Still, I cannot get her to a regular doctor to hear about the technology available to her or so she can hear about what is going to happen to her so she can be prepared. My father is taking care of her at present because she doesn't want anyone else to help.
Would any of you give me some kind of picture of the future for her? I know that everyone progresses at a different rate and some people have different issues in dealing with the disease, but I would appreciate any glimpses into the future I can get.
shh
She cannot walk at all. Her leg strength is gone and she has no strength in her back either. Her right arm is becoming useless and her voice is raspy. After she eats she says her esophagus hurts for a long time. Still, I cannot get her to a regular doctor to hear about the technology available to her or so she can hear about what is going to happen to her so she can be prepared. My father is taking care of her at present because she doesn't want anyone else to help.
Would any of you give me some kind of picture of the future for her? I know that everyone progresses at a different rate and some people have different issues in dealing with the disease, but I would appreciate any glimpses into the future I can get.
shh