alspatient
Member
- Joined
- May 6, 2007
- Messages
- 21
- Reason
- PALS
- Country
- IN
- State
- Tamilnadu
- City
- chennai
Hi,
I am from India. Let me call myself Bob. That will be easier to remember. I joined this forum because we don't have one in India. I was very active and athletic prior to being afflicted with ALS. It is hard to believe that I used to jog and walk for about 10 Kilometers everyday six days a week. I taught my son to swim and bicycle and made him start jogging with me. I had a successful career till 1998 when I noticed that my speech started to slur and my friends who had known me started thinking that I had started drinking heavily even in the mornings. Then one day when I was running my left leg felt heavier. Then I knew that something was wrong. It took a lot of time and trial and error to be iagnosed with ALS in 2000. I have stopped working from 2000. My condition is slowly deteriorating. Now there are hardly a few people who can comprehend what I am saying.
My friends and drinking buddies have all stopped contacting me. I feel misrable when I open my mail box and see that people have not even cared to reply. A very few people answer my querries when I mail them but they have stopped contacting me.
I guess that I am no longer the FUN GUY I was then.
My family is very supportive of me. I stay with my mother and she cares for me. I have a paid help who is available for the whole day. My wife works and so cannot stay with me. My son is studying.
I don't know how to cope with feeling neglected by people who I believed were close friends. I don't expect them to visit me or call me. But I did expect them to at least reply to my mmails. Now I have gradually learnt to scale down the expectations from others.
I wonder what the experience of the others with ALS is in Canada.
If you can cheer me please write a few words of support for me. Tell me how the others have been coping with similar attitudes in people.
But I have to admit that a few others have been very supportive and cared to reply to me. They call me and talk to me though they cannot understand what I am saying.
Life goes on.
My English may sound different but that is how it is spoken and written here.
I am from India. Let me call myself Bob. That will be easier to remember. I joined this forum because we don't have one in India. I was very active and athletic prior to being afflicted with ALS. It is hard to believe that I used to jog and walk for about 10 Kilometers everyday six days a week. I taught my son to swim and bicycle and made him start jogging with me. I had a successful career till 1998 when I noticed that my speech started to slur and my friends who had known me started thinking that I had started drinking heavily even in the mornings. Then one day when I was running my left leg felt heavier. Then I knew that something was wrong. It took a lot of time and trial and error to be iagnosed with ALS in 2000. I have stopped working from 2000. My condition is slowly deteriorating. Now there are hardly a few people who can comprehend what I am saying.
My friends and drinking buddies have all stopped contacting me. I feel misrable when I open my mail box and see that people have not even cared to reply. A very few people answer my querries when I mail them but they have stopped contacting me.
I guess that I am no longer the FUN GUY I was then.
My family is very supportive of me. I stay with my mother and she cares for me. I have a paid help who is available for the whole day. My wife works and so cannot stay with me. My son is studying.
I don't know how to cope with feeling neglected by people who I believed were close friends. I don't expect them to visit me or call me. But I did expect them to at least reply to my mmails. Now I have gradually learnt to scale down the expectations from others.
I wonder what the experience of the others with ALS is in Canada.
If you can cheer me please write a few words of support for me. Tell me how the others have been coping with similar attitudes in people.
But I have to admit that a few others have been very supportive and cared to reply to me. They call me and talk to me though they cannot understand what I am saying.
Life goes on.
My English may sound different but that is how it is spoken and written here.