New Member-A Cousin from England

Ben64

New member
Joined
Jul 2, 2019
Messages
7
Reason
PALS
Diagnosis
04/2019
Country
UK
State
EX
Hi Guys,
I am new to this forum, and new to the disease. Diagnosed (eventually) in April this year(2019) I have had the symptoms for about four years.
But, before we get into all of that. I need to clear a couple of things that might come back to bite ones posterior.
1. Are you guys comfortable with a Brit in the mix?
2. I do not follow soccer, therefore I am completely unbiased as to the result of the match tonight in Lyon.

May I contribute???

Oh, I'm being asked to enable push notifications. What's this?

Thank you in advance,

Ben
 

Nikki J

Moderator
Joined
Mar 22, 2012
Messages
7,477
Reason
PALS
Diagnosis
04/2014
Country
US
State
MA
Welcome

Certainly you are welcome. Some of our most loved members have been Brits. We are mostly North American but have people from all over including Down Under.

We are fairly tolerant of differing sports loyalties so no worries

We look forward to getting to know you.

Push notification have to do with you being actively informed about messages replies and such. Things not to your liking can be adjusted in the menu that appears when you click on your user name on the right near the top.

I have a number of cousins in the UK ( born in US but British parent) always happy to have one more!
 

nona

Active member
Joined
Oct 1, 2018
Messages
91
Reason
PALS
Diagnosis
02/2015
Country
US
State
NH
I love that this forum is internationally used.
 

KimT

Forum Supporter
Extremely helpful member
Joined
Nov 18, 2014
Messages
3,297
Reason
PALS
Diagnosis
08/2015
Country
US
State
South
Diversity is what gives this forum our strength. We have people from all over the world and all kinds of different backgrounds.
Welcome!
 

Ben64

New member
Joined
Jul 2, 2019
Messages
7
Reason
PALS
Diagnosis
04/2019
Country
UK
State
EX
Hi Nikki J,
I'll assume you speak for the majority, so thank you all for welcoming me aboard.

I will get to placing an image up there, but be warned. I have been likened to a chewed toffee.

May I introduce myself.
I am 64 this year, and I was diagnosed ALS on April 3rd this year. Although the symptoms have been evident for 4 years. Up until August of last year(2018) the symptoms had remained in just the left leg. It was only when the right leg developed the same symptoms that tests started on a possible diagnosis of MND or similar. Up until August the general theory was a trapped nerve. Directed testing from August to April confirmed ALS.
I will post a new thread detailing how I hope the knowledge and experience of the members. Along with the fresh enthusiasm of a recently diagnosed new member, could create alternative areas of research. Research that we could do with the help of an algorithm. Any geeks among the members?
Ben
 

lisa g

Active member
Joined
Apr 17, 2019
Messages
48
Reason
PALS
Diagnosis
04/2019
Country
US
State
Florida
Welcome Ben. Sorry to have to welcome you but your at the right place to get answers.
 

KarenNWendyn

Forum Supporter
Moderator
Joined
Jul 29, 2017
Messages
2,138
Reason
PALS
Diagnosis
07/2017
Country
US
State
Oregon
Welcome Ben. I also started with the left lower leg, followed soon after by the right leg. The fun never stops with ALS.

Glad you found us though. International members rare always welcome.
 

blitzc

Distinguished member
Joined
Apr 20, 2018
Messages
137
Reason
PALS
Diagnosis
01/2018
Country
US
State
OH
Welcome! We all need to become more diverse! I await fresh and interesting perspectives from you and all our friends from around the world. 🌏
Cathy
 

Ben64

New member
Joined
Jul 2, 2019
Messages
7
Reason
PALS
Diagnosis
04/2019
Country
UK
State
EX
Thank you all for your welcome, especially the moderators.
Karen, as a mod perhaps you could advise.
Before I launch off on the posting circuit. Is it ok to incorporate humour into posts and replies. Not the sort that would offend. I am an English gentleman after all what!
Anecdotes and paraphrases. The stuff that cracks a smile, maybe a chuckle. I've read a number of posts now and they seem very matter of fact. Official. I'd like to get folks chuckling, not laughing their fannies* off as this might disrupt good communication.
*We say 'Arse' are these words permissible here, using this context:
"Drunk off his arse" this reads better than say,
"Drunk off his maximus glutomus"
Or perhaps I should post with the humour, and let the moderator decide before releasing it to the unsuspecting masses.
'Moderators' ~ sounds like a futuristic neuro-police force.
Only kidding
B.
 

Nikki J

Moderator
Joined
Mar 22, 2012
Messages
7,477
Reason
PALS
Diagnosis
04/2014
Country
US
State
MA
We are generally rated pg ( parental guidance) here. Regarding humour. We have a whole subforum for it. Scroll down and read if you have not already.

If you are replying to a thread or starting one that is related to ALS a light touch is fine as long it is not directed at another poster in a mean - spirited way- (something I know an English gentleman would never do) but if the point of your post is humour it should go in the humour section. Hope this makes sense!
 

Ben64

New member
Joined
Jul 2, 2019
Messages
7
Reason
PALS
Diagnosis
04/2019
Country
UK
State
EX
Perfect sense,
Unfortunately the time difference dictates my imminent departure to bed. Wednesday has arrived.
Good night all, and to quote one of your own
"I'll be back".
b.
 

affected

Guru status reached
Joined
Apr 26, 2013
Messages
11,665
Reason
Lost a loved one
Diagnosis
05/2013
Country
OZ
State
home
Welcome Ben I'm from down under but they let me play, so you'll be fine. Test your humour out and see how it sits - I'd rather English humour any day - think Terry Pratchett and I'm rolling about laughing that maximus glutomus off :ROFLMAO:
 

KarenNWendyn

Forum Supporter
Moderator
Joined
Jul 29, 2017
Messages
2,138
Reason
PALS
Diagnosis
07/2017
Country
US
State
Oregon
I personally find “maximus glutomus” much funnier than “arse”.

Personally, if I were driving down a road and came to a sign that said “dead end”, I’d be much more amused if it read “gluteal necrosis” (but I have a dark sense of humor).

Do make frequent use of the “jokes” sub forum.
 

KenM

Member
Joined
Jun 21, 2019
Messages
12
Reason
PALS
Diagnosis
03/2018
Country
US
State
NC
Welcome Ben. Speaking for myself, I find making jokes about my condition weirdly comforting. Last time I checked, ALS can't take away our sense of humor. So that's something. References to Monty Python especially welcome.
 
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