rknt50a
Distinguished member
- Joined
- Aug 14, 2006
- Messages
- 215
- Reason
- Lost a loved one
- Diagnosis
- 09/1996
- Country
- US
- State
- IN
- City
- IN
Two bills were introduced in US last week and need your help to move them ahead asap.
Thanks if you can read and act and spread the word. They are bipartisan and are designed to help provide paths and resources that can move ALS therapy candidates forward more quickly. These came largely from the efforts of grass-roots people with ALS and caregivers and I AM ALS.
Info...
Action step 1...
Act for ALS (House Bill establishes funding for expanded access programs and and FDA resources for neurodegenerative diseases)
Action step 2...
Promising Pathway Act (Senate Bill establishes a provisional approval path)
Those action clicks are easy peasy... they find your legislators and have a starting letter that you can modify and send in less than a minute.
Many thanks.
Thanks if you can read and act and spread the word. They are bipartisan and are designed to help provide paths and resources that can move ALS therapy candidates forward more quickly. These came largely from the efforts of grass-roots people with ALS and caregivers and I AM ALS.
Info...
Action step 1...
Act for ALS (House Bill establishes funding for expanded access programs and and FDA resources for neurodegenerative diseases)
Action step 2...
Promising Pathway Act (Senate Bill establishes a provisional approval path)
Promising Pathway Act - I AM ALS
iamals.org
Those action clicks are easy peasy... they find your legislators and have a starting letter that you can modify and send in less than a minute.
Many thanks.