AviatorDave
New member
- Joined
- Aug 22, 2018
- Messages
- 2
- Reason
- Learn about ALS
- Country
- UK
- State
- Surrey
- City
- London
Hi - a tentative question, having read the stickies and visited a neuro earlier this year (February).
I’m a 52 year old man, now had twitches for about 18 months (arms, back, legs) and in February had an EMG on my left side. This revealed Fascs at a number of points, but nothing else. Ok, the fascs are non-specific - one of my friends who cycles gets them (but nothing like as much as me).
Since then I have another 2 issues:
I thinkthe top of my left foot looks like it’s thinned out a bit in between the toes. It seems different, less fleshy, than the right, and some of the bones can be seen a lot more clearly than on the other side. Admittedly, the bottom of the left foot (in the arch) was EMG’d in February- all that was noted was fasciculation there, it was, according to the neurophysiologist who ran the test, the site
My tongue now twitches, since late March. It was EMG’d in Feb- nothing noted - and I feel my speech has been less precise this past 4 or so months, some slurred words, e.g “s” becomes “th”. I am certain though that my speech is not any slower. No comments from anyone else on the speech, so far. Tongue feels quite painful/uncomfortable often. Would this fit with bulbar progress in this period?
At my neuro exam in Feb, other than the twitching all that was noted was a brisker reflex on one arm than the other (can’t remember the reflex - think it might be the right “supination reflex”).
So the reason for the question being tentative- I don’t want to waste the time of the neuro or people here, however based on peoples experience, would a return to the Neuro be prudent? Do EMG’s after a year of symptoms showing only fascs happen on people with ALS?
Thanks
I’m a 52 year old man, now had twitches for about 18 months (arms, back, legs) and in February had an EMG on my left side. This revealed Fascs at a number of points, but nothing else. Ok, the fascs are non-specific - one of my friends who cycles gets them (but nothing like as much as me).
Since then I have another 2 issues:
I thinkthe top of my left foot looks like it’s thinned out a bit in between the toes. It seems different, less fleshy, than the right, and some of the bones can be seen a lot more clearly than on the other side. Admittedly, the bottom of the left foot (in the arch) was EMG’d in February- all that was noted was fasciculation there, it was, according to the neurophysiologist who ran the test, the site
My tongue now twitches, since late March. It was EMG’d in Feb- nothing noted - and I feel my speech has been less precise this past 4 or so months, some slurred words, e.g “s” becomes “th”. I am certain though that my speech is not any slower. No comments from anyone else on the speech, so far. Tongue feels quite painful/uncomfortable often. Would this fit with bulbar progress in this period?
At my neuro exam in Feb, other than the twitching all that was noted was a brisker reflex on one arm than the other (can’t remember the reflex - think it might be the right “supination reflex”).
So the reason for the question being tentative- I don’t want to waste the time of the neuro or people here, however based on peoples experience, would a return to the Neuro be prudent? Do EMG’s after a year of symptoms showing only fascs happen on people with ALS?
Thanks