Last Thursday I met with the neuropsychologist to go over my evaluation from the week before. My evaluation showed that I either have vascular disease or Multiple Sclerosis. Based on the results of the tests I have cognitive issues, all pointing to subcortical pathology.
I'm not scheduled to see my neurologist for a few more months. I asked the neuropsych what he thought it was. He said he hated to say it but he strongly feels it is M.S. He said my cognitive signs line up exactly with my motor signs.
I know this is an ALS board. I have to find an MS board. I am still in limbo and am going to start therapy soon, due to the good doctor's "strong recommendation".
I have cognitive issues. I knew I did and yet I was still in shock. I am in shock and I am angry. No wonder so many things weren't going well. I got a "16/16" in effort which he said meant I tried my best. He said they have ways of checking that. I had no idea my small motor skills were involved. I had no idea how bad off I was. My memory is the least of my issues.
If anyone knows of a good MS board, please let me know. I have yet to hear from my neuro and the neuropsych said the neuro will need to make the diagnosis "technically". How can they do that w/o lesions? How can they do that w/o even ordering a spinal tap to check for the "o" bands? And I've seen two neurologist, one who is internationally known!
So I've had cardiomyopathy and now probable MS? Both autoimmune diseases!
No one needs to respond, Al-you don't even have to post this. I am just so frustrated and needed a little "type" therapy.
I'm not scheduled to see my neurologist for a few more months. I asked the neuropsych what he thought it was. He said he hated to say it but he strongly feels it is M.S. He said my cognitive signs line up exactly with my motor signs.
I know this is an ALS board. I have to find an MS board. I am still in limbo and am going to start therapy soon, due to the good doctor's "strong recommendation".
I have cognitive issues. I knew I did and yet I was still in shock. I am in shock and I am angry. No wonder so many things weren't going well. I got a "16/16" in effort which he said meant I tried my best. He said they have ways of checking that. I had no idea my small motor skills were involved. I had no idea how bad off I was. My memory is the least of my issues.
If anyone knows of a good MS board, please let me know. I have yet to hear from my neuro and the neuropsych said the neuro will need to make the diagnosis "technically". How can they do that w/o lesions? How can they do that w/o even ordering a spinal tap to check for the "o" bands? And I've seen two neurologist, one who is internationally known!
So I've had cardiomyopathy and now probable MS? Both autoimmune diseases!
No one needs to respond, Al-you don't even have to post this. I am just so frustrated and needed a little "type" therapy.