Oh wow cammarak, me too! You know, thought I'd get better. I had symptoms for two years before they suddenly became too bad to 'hide' and now 18 months on from that, here we are.
Which brings me to you Kags. Unfortunately PLS is eliminating other things. I have been through all sorts to get here. I have now had a physician and two neuros say it's either PLS or a variant of that called Mills Syndrome. I'm seeing an excellent Neuro in Sydney in 35 days, but who's counting...really hoping he will give me final diagnosis. As they like to rule out ALS I've been told five years until a diagnosis. I've never had a dirty EMG so here's hoping...
One thing you can do to help your mum is shoo her off to bed for a rest when you visit. Not all the time of course, you would be a good judge of whether she needs rest or not. She will no doubt appreciate a good sleep knowing your dad is well cared for in her absence. Then get cracking on some folding, sweeping the floor, something that she won't have to do later.
I find it extremely difficult to ask for help, so if it's done for me without asking...awesome.
And listen. Let her cry, grumble, rant and rave without judgement. She will really appreciate that. You could do that for your dad, too.
All the best, Kags. We are all here to listen and support however we can.
God bless, Janelle x