New here Help please.. loss of muscle function

[Amber32]

Hi everyone. I am on this form for my Mom who has been going through so much in the last few years. It all started back in Dec of 2016 when she lost all movement from her neck down. (For 8 days) all tests came back normal (MRI, CT scan blood work ect) She has since been losing movement sporadically. She gets an exhausted feeling come through her body and loses any motor function in her arms, legs, hands, feet and trunk.

Has anyone lost movement (unable to move arms, legs, trunk) and regained it over and over again?!
She also has full body tremors off and on and has been very very tired (zombie like) with bouts of high blood pressure/pulse spikes. Also, at times she loses the ability to write. Wondering if this could be some symptoms? Shes been with a Walker, cane and sometimes wheelchair since 2016 We finally got into a neuromuscular specialist who listened to our concerns and said he thinks she has autonomic neuropathy. All of her previous diagnoses have been conversion disorder ���� isn't autonomic neuropathy linked to something?
Thank You!

 

[ShiftKicker]

Hi Amber-

There are all sorts of movement disorders. What your mum has does not follow a pattern of symptoms that indicates ALS.
Some of the more common movement disorders that share some symptoms are listed here, about halfway down: https://www.alsforums.com/forum/do-...-common-concerns-about-possible-symptoms.html

It sounds like you have found a doctor who is taking your mother's symptoms seriously and has come up with a potential diagnosis. Autonomic Neuropathy is not at all what ALS is. There are many websites out there that explains what that means and how this can affect people. I encourage you to speak with her and her doctor if you have any questions specific to your mother's care and what next steps to take.

 

[Amber32]

Thank You! That is reliving to hear it doesn't match up to ALS. The doc would never say..he was one to kind of think out loud and mumble while doing the exam. Couldn't understand him much. He still wants to do an EMG for some reason..maybe to rule out other diseases? He also wants to do a skin sample..and possible MRI. He looked at her feet and said her skin tone and the way her foot turns in he thinks she has Charot-Marie Tooth syndrome also. We are trying to get her off a bunch of her meds because we know alot of meds aren't good, but it seems like he wants to put her on more. Anyways..I will be happy once the EMG comes back and confirms it's not a fatal or degenerative disease. My heart goes out to everyone that has to deal with these diseases. Prayers to everyone.