Becca,
I think you need to have a serious conversation with his neuro or GP. Surely they could come up with a way that home care or hospice, as has been suggested, could come in and provide you with relief. What will happen if you end up in the hospital? This needs to pointed out to his physician, as well as his family.
I don't know if this would be practical for your situation, but I used to talk to a cALS, whose husband was in bad shape. She made up a nice little sign to put on the front door, to tell visitors that it was not a good time to visit. Something to the effect that visitors are welcome, but please call first, as now is not a good time. Their family and friends respected that.
I think you need to have a serious conversation with his neuro or GP. Surely they could come up with a way that home care or hospice, as has been suggested, could come in and provide you with relief. What will happen if you end up in the hospital? This needs to pointed out to his physician, as well as his family.
I don't know if this would be practical for your situation, but I used to talk to a cALS, whose husband was in bad shape. She made up a nice little sign to put on the front door, to tell visitors that it was not a good time to visit. Something to the effect that visitors are welcome, but please call first, as now is not a good time. Their family and friends respected that.