Cyndi G
New member
- Joined
- Aug 24, 2015
- Messages
- 7
- Reason
- CALS
- Diagnosis
- 08/2015
- Country
- US
- State
- California
- City
- Oakley
My partner, the love of my life, was just diagnosed with Bulbar onset ALS. His speech is almost gone and swallowing and mucus are a big problem. We are trying to find answers, muddling thru as best we can but so much of what I'm seeing here is for the problems of muscle weakenss and paralasys which he isn't experiencing yet. We don't know what to expect. Will meet with a new neurologist tomorrow to discuss PEG and rilutek....don't even know what else to ask about yet. I would love to hear from others who are dealing with this particular form of ALS!