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PALS
Diagnosis
09/2006
Country
US
State
PA
City
Bethlehem
My name is Hank and I have dealing with problems since 1999 and went throught about 75 test and as many blood test as well and was first diagosed with CIDP and was put on IVG treatments for three days a month for about four years and I kept telling the doctors that I was getting worse so I went out to hershey Medical in PA and was diagosed with in six hours of testing that I had ALS and that was on 09-11-2006 so that is where I'm at today. Tkank you for listeing.
 

Peg B

Distinguished member
Joined
Nov 5, 2006
Messages
414
Reason
PALS
Diagnosis
10/2006
Country
US
State
Michigan
City
Flint
Hi Hank,

I am sorry you have to be here, but Welcome! It sounds like you have had a long time of waiting and probably lots of worry. You will find lots of good people here and I hope this forum helps you much. Sincerely, Peg
 
Joined
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Reason
PALS
Diagnosis
09/2006
Country
US
State
PA
City
Bethlehem
From Hank the new Guy

Thank you for your respones. I'm new at this and have no idea how to even to view the members list since the system will not let me in it. Peg do you also have ALS ? I hope not.
 

ZenArcher

Senior member
Joined
Feb 22, 2007
Messages
672
Reason
PALS
Diagnosis
02/2007
Country
US
State
PA
City
McEwensville
Hank, because you're a new member there are some features that won't be available for a bit. After you've been posting for a while things will open up. The administrators did this to help cut down on advertising and spam messages.

I was diagnosed in February 2007 at the ripe old age of 38. I don't live far from you either, I'm about 45 minutes west of the Poconos on I-80. I've been down your way quite a few times when I was doing sales. I'm a patient of Dr. Simmons and go down there every 3 months for clinic. Do you still go to Hershey or down to Philadelphia?
 

liz

Senior member
Joined
Nov 9, 2006
Messages
642
Reason
PALS
Diagnosis
11/2006
Country
US
State
NY
City
Albany
Welcome, Henry. I hail from Lancaster and spent four years living in Easton when I was in college. Also worked in Allentown for a short while before I became a New Yorker. Sorry you had to join us; but, you're in good company here. I was diagnosed in November 2006.
 

Al

Moderator emeritus
Joined
May 25, 2004
Messages
7,960
Reason
PALS
Diagnosis
10/2003
Country
CA
State
On
City
NW of Toronto
Hi Hank from up here in Canada. It sucks to have to be here but as you can see we're a friendly bunch from all over the world. Welcome.
AL.
 
Joined
Mar 7, 2008
Messages
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Reason
PALS
Diagnosis
09/2006
Country
US
State
PA
City
Bethlehem
New Guy (Hank)

I hope that your up and about, I'm still walking but not to good and I do have an electric wheelchair which you can not believe what it cost well over $58,000.oo and the voice machine cost $8,400.00 thank god for medical insurance. I haven't used either one yet but I'm ready. I have a history in the nuclucer submarine force in the US NAVY and some medical people are trying to find out if that may be some of the cause of my ALS. Well it really dosen't matter to me but for others who knows. I blame no one I have it so we will deal with it the best that we could and go on with life. Take care and God Bless.
 
Joined
Mar 7, 2008
Messages
0
Reason
PALS
Diagnosis
09/2006
Country
US
State
PA
City
Bethlehem
Hank, because you're a new member there are some features that won't be available for a bit. After you've been posting for a while things will open up. The administrators did this to help cut down on advertising and spam messages.

I was diagnosed in February 2007 at the ripe old age of 38. I don't live far from you either, I'm about 45 minutes west of the Poconos on I-80. I've been down your way quite a few times when I was doing sales. I'm a patient of Dr. Simmons and go down there every 3 months for clinic. Do you still go to Hershey or down to Philadelphia?

Well I'm an old fart copared to you I will turn 64 in July so your old enough to be my son. I'm up on I-80 some times when I take the wife to the crossings to spend money which is nothing new. So how are you doing? I hope well. I travel to Hershey Medical Center every three months to get check out at the ALS clinic and since 09-06 I have been holding my own even though my speech is sometimes week or not clear and I walk with a cane for very short distances. Well you take care. God Bless you and your family.
 
Joined
Mar 7, 2008
Messages
0
Reason
PALS
Diagnosis
09/2006
Country
US
State
PA
City
Bethlehem
Welcome, Henry. I hail from Lancaster and spent four years living in Easton when I was in college. Also worked in Allentown for a short while before I became a New Yorker. Sorry you had to join us; but, you're in good company here. I was diagnosed in November 2006.

It is nice to hear from others who share the same problems but life gose on and we play the cards that are delt to us this day and every day after. Lancaster was that next to Intercourse PA or Blue Ball PA well anyway that is nice country. So now you live in NY so sorry. Take care and God Bless you and your family and have a happy easter.
 

CindyM

Moderator emeritus
Joined
Sep 17, 2006
Messages
3,543
Reason
Learn about ALS
Country
US
State
New England
City
Anytown
welcome to the forum. Hank. I see you have met some of our great folks already. Glad you decided to join us! Cindy
 
Joined
Mar 7, 2008
Messages
0
Reason
PALS
Diagnosis
09/2006
Country
US
State
PA
City
Bethlehem
Hank

welcome to the forum. Hank. I see you have met some of our great folks already. Glad you decided to join us! Cindy

It is nice to hear from you Cindy I hope that your doing well and your ready for Easter. I look forward in hearing more about you and if you have ALS. You take care and God Bless you and your family.
 

panamokapal

New member
Joined
Feb 17, 2008
Messages
5
Reason
PALS
Diagnosis
09/2005
Country
US
State
ny
City
ridge
first time long time

this is my first post, but i read the new posts everyday. i live on the east end of long island and travel to hershey every 3 mos. to see dr. simmons and susan. i was diagnosed in august 05 at 43 and have als over 4 yrs. now. my next visit is 4/9 at 8am and if anyone is going to be there then , lets say hello
 
Joined
Mar 7, 2008
Messages
0
Reason
PALS
Diagnosis
09/2006
Country
US
State
PA
City
Bethlehem
From hank

this is my first post, but i read the new posts everyday. i live on the east end of long island and travel to hershey every 3 mos. to see dr. simmons and susan. i was diagnosed in august 05 at 43 and have als over 4 yrs. now. my next visit is 4/9 at 8am and if anyone is going to be there then , lets say hello

Well we have the same doctor and the same team at Hershey. My next vist is April 25th at 8AM tell susan that Hank said hello. Boy do you have a long trip every three months. Do you go the night before and stay in a Inn or lodge? it sounds like I'm the old man compared to the others. I wish you well in your fight and keep positive no matter what is thrown your direction.
 

ZenArcher

Senior member
Joined
Feb 22, 2007
Messages
672
Reason
PALS
Diagnosis
02/2007
Country
US
State
PA
City
McEwensville
My next visit is May 7th but I may end up down there sooner to participate in one of their studies. You'll both get to see the new building before me.
 

panamokapal

New member
Joined
Feb 17, 2008
Messages
5
Reason
PALS
Diagnosis
09/2005
Country
US
State
ny
City
ridge
in the colder months we come in the night before and leave right after. summertime we stay at the high meadow camp ground or a hotel for a week. we've been going to hershey park every summer for ten years. its well worth the trip with the care they give. in new york they don't do anything but tell you to go home and die. did you get lithium from dr. simmons since the arimoclomol has been put off again.
 
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