Dave K
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Please consider forwarding this post to any attorneys, doctors, OTs, PTs, RTs, or nurses who may be interested in volunteering for a new foundation--the ALS Action Foundation (ALSAF)--whose mission is to conduct research and promote education and awareness concerning the resources available to people with ALS and their families. The foundation is looking for professionals who are willing to volunteer a few hours of research each month.
Why Do We Need A New Foundation When We Already Have The ALS Association?
At this time, ALS has no known cause or cure, and drug development can take over 10 years, which is beyond the average 3-5 year life expectancy of someone diagnosed with ALS. Therefore, the work of the ALS Association (ALSA) to push for development of new treatments will likely not benefit people who are already living with ALS. In the meantime, for people with ALS, their “penicillin” is medical equipment to help them function, and their “vaccine” is the service of other people who are able and willing to provide them with the care they need. Unfortunately, people with ALS too often face daunting challenges getting the care and equipment they need to make the most of their remaining time. That is why the ALS Action Foundation (ALSAF) is being started specifically to benefit people who are already living with ALS, by doing research and promoting education and awareness concerning the resources available to people with ALS and their families. This will be an important supplement to the excellent work of ALSA.
Any professionals interested in learning more about this opportunity to help people with ALS should email David Killoran at [email protected].
Why Do We Need A New Foundation When We Already Have The ALS Association?
At this time, ALS has no known cause or cure, and drug development can take over 10 years, which is beyond the average 3-5 year life expectancy of someone diagnosed with ALS. Therefore, the work of the ALS Association (ALSA) to push for development of new treatments will likely not benefit people who are already living with ALS. In the meantime, for people with ALS, their “penicillin” is medical equipment to help them function, and their “vaccine” is the service of other people who are able and willing to provide them with the care they need. Unfortunately, people with ALS too often face daunting challenges getting the care and equipment they need to make the most of their remaining time. That is why the ALS Action Foundation (ALSAF) is being started specifically to benefit people who are already living with ALS, by doing research and promoting education and awareness concerning the resources available to people with ALS and their families. This will be an important supplement to the excellent work of ALSA.
Any professionals interested in learning more about this opportunity to help people with ALS should email David Killoran at [email protected].