Paul Wicks
Member
- Joined
- Feb 15, 2006
- Messages
- 23
- Reason
- CALS
- Diagnosis
- 06/2015
- Country
- UK
- State
- LO
- City
- London
Hi all,
Just a quick note to say we've recently added a new feature for patients with PLS. Previously if you joined the ALS/PMA/PLS community and had PLS you didn't get the percentile curve backdrops that the ALS patients had. I'm pleased to say that now that we have 150+ PLS members we have enough data to create these curves, and so if you sign up and enter some ALSFRS-R scores you will be able to see how your PLS is progressing relative to other patients.
Hope you find it useful / interesting!
Best wishes
Paul Wicks
Just a quick note to say we've recently added a new feature for patients with PLS. Previously if you joined the ALS/PMA/PLS community and had PLS you didn't get the percentile curve backdrops that the ALS patients had. I'm pleased to say that now that we have 150+ PLS members we have enough data to create these curves, and so if you sign up and enter some ALSFRS-R scores you will be able to see how your PLS is progressing relative to other patients.
Hope you find it useful / interesting!
Best wishes
Paul Wicks
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