- Feb 20, 2020
Hello. First post. My 65 y/o husband diagnosed with Brait-Fahn-Schwarz disease 2 weeks ago at Cleveland Clinic. It’s basically Parkinson’s disease which he has battled for 3 years and then developed weakness and atrophy of legs and hand. He saw ALS specialists and confirmed through EMG. The progression of the ALS follows the same course. Has anyone else had this disease on this forum? It’s very rare I think. We are still trying to absorb the shock but we are devastated. My husband is in denial I think and I’m trying to be strong but it is very hard. This forum has helped me a lot to see how other PALs and CALs cope with this horrible disease. Thank you!