GXTrex
Distinguished member
- Joined
- Dec 2, 2020
- Messages
- 174
- Reason
- Lost a loved one
- Diagnosis
- 12/2020
- Country
- US
- State
- NY
- City
- Long Island
Hey all. I have been lurking on these forums for a few weeks now. You all are so supportive and full of advice.
My dad was diagnosed a little over a week ago. My mom has been having a lot of her own issues, so its up to my brother and I to take care of them. He has a follow up with the doctor that diagnosed him next week, and the first appointment with a local als clinic in about a month.
I have been trying to absorb so much information at once that I have been so overwhelmed (in addition to my now having to handle all of their finances and legal issues). We are trying to get them on medicaid to get them some free at home care to help out.
My dad's first symptoms were weak wrists indicating limb onset back in February. Now he has minimal use of his hands but can feed himself slowly. He is slurring his words but is very understandable, and can walk fairly well but wobbles sometimes. He is still running around getting his affairs in order (selling his practice, signing legal documents, food shopping, etc).
Is there more I should be doing at this point? I have already looked into bathroom modifications, power wheelchairs, lifts, and more even though he is not there yet. Should I wait for his next few appointments and see what the doctors say? Thanks in advance
My dad was diagnosed a little over a week ago. My mom has been having a lot of her own issues, so its up to my brother and I to take care of them. He has a follow up with the doctor that diagnosed him next week, and the first appointment with a local als clinic in about a month.
I have been trying to absorb so much information at once that I have been so overwhelmed (in addition to my now having to handle all of their finances and legal issues). We are trying to get them on medicaid to get them some free at home care to help out.
My dad's first symptoms were weak wrists indicating limb onset back in February. Now he has minimal use of his hands but can feed himself slowly. He is slurring his words but is very understandable, and can walk fairly well but wobbles sometimes. He is still running around getting his affairs in order (selling his practice, signing legal documents, food shopping, etc).
Is there more I should be doing at this point? I have already looked into bathroom modifications, power wheelchairs, lifts, and more even though he is not there yet. Should I wait for his next few appointments and see what the doctors say? Thanks in advance