New diagnosis and needing more info.

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ValRunk

Active member
Joined
Mar 27, 2010
Messages
47
Reason
DX UMND/PLS
Diagnosis
09/2009
Country
US
State
NE
I was just diagnosed with PLS in 9/2009 and was trying to get information from the internet about it to see what I'm up against and what I need to do to FIGHT the inevitable. The problem is . . . all of the sites I've found, until now, tell me the FACTS and not the personal problems that people have had to face. :roll:
 

olly

Extremely helpful member
Joined
Jan 10, 2008
Messages
2,732
Reason
PALS
Diagnosis
11/2007
Country
uk
State
uk
hi valrunk.
welcome to the forum:)
unfortunatly there is only basic info on pls unless you delve into the neurological sites for research.
the best place to get advice with living with pls is right here on forums like this.
we all understand the daily troubles living with this desease.
any questions you have please ask:smile:

if you look at the sticky post at the top of the pls forum you will see the spf page there.
they post on the web page a seasonal synapse ,this can give helpfull advice along with fund raising events ect.
 
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