PeteJr
New member
- Joined
- Sep 8, 2013
- Messages
- 8
- Reason
- PALS
- Diagnosis
- 07/2013
- Country
- US
- State
- Utah
- City
- Lehi
Hi everyone....Im glad this forum is here to help me and anyone else with this horrible diease. My wife and I first noticed my systems by my slurred speech, it wasn't bad, and that was in March. At first everyone thought I was drinking too much or drunk. Then my right arm started twiching from my middle arm up to my shoulder. So I was just blowing it off and everyone said it had to do with something else. But as the months progressed my speech got worse and went to the University of Utah doctor on July 18 and diagnosed with ALS or motor nureon diease as of today my syptoms are my speech is to the point that my wife hardly understands me. It is so hard for me to get words out, but my brain says to me just say and talk normally. But when I try to speak its all a slur..... I am now having a hard time swallowing. I have been drinking the drink brand Naked and the flavor is Mango. It seems to break up the flem so that I can't clear my throat. My question to anyone is now more often I am experiancing bouts of choking to the point that I act like Im going to throw up. But nothing comes out, and then follows the closing of my vent tubes and can't breeth... then I go into panic mode and it makes it worse. I have to calm myself down to start my normal breathing again. So has this happened to anyone, and how do you control it or make it so you can breath easier.
I try not to think about whats ahead and I am to the point where I am having to get a program where I can type my conversation. I am 58 years old and am at the point in my life where I want to enjoy it. But this is slowing me down. Lets all get together and be strong for each other and beat this stupid disease. Thank you all for your time. And any help would be apprecaited......
I try not to think about whats ahead and I am to the point where I am having to get a program where I can type my conversation. I am 58 years old and am at the point in my life where I want to enjoy it. But this is slowing me down. Lets all get together and be strong for each other and beat this stupid disease. Thank you all for your time. And any help would be apprecaited......