Status
Not open for further replies.

beverly rees

Active member
Joined
Nov 2, 2008
Messages
85
Reason
Lost a loved one
Country
US
State
ca
City
portola valley
We had our first ALS clinic visit at Stanford on Friday. The neurologist told us they are starting a new clinical trial and would like David to participate. The study lasts for one year and would require a pic line with the antibiotic ceftriaxone administered twice a day.
You would have a 70% chance of getting the drug.

Does anyone have any information on this treatment? Bev
 

Al

Moderator emeritus
Joined
May 25, 2004
Messages
7,960
Reason
PALS
Diagnosis
10/2003
Country
CA
State
On
City
NW of Toronto
There a few threads about it at the bottom of this page.

AL.
 

Momma

Member
Joined
May 12, 2009
Messages
28
Reason
Learn about ALS
Diagnosis
05/2009
Country
US
State
CA
City
Mountain View
I am currently doing the trial. I have a Hickman Cathedar. I have been doing it since Oct 13. Don't really have anything huge to report except that I feel like I'm at least trying to fight this damn thing.

Momma
 

RoadKill

Active member
Joined
Aug 19, 2009
Messages
91
Reason
PALS
Diagnosis
05/2009
Country
US
State
MD
City
Suburbs
An exciting week for me. Today: got a BiPAP machine. The woman who came to set it up was a bit perturbed when I said, "So, when I'm dead my heirs can sell this, right?" Wednesday, I get a Hickman. Thursday, I get whatever they give me -- ceftriaxone or placebo. Friday, I'm seeing my GP for an AD prescription. Saturday... maybe with the increased oxygen and the AD, I'll go out dancing. If I can stand up long enough.
 
Status
Not open for further replies.
Top