maddoxaj
New member
- Joined
- Jul 26, 2008
- Messages
- 1
- Reason
- Loved one DX
- Country
- US
- State
- NC
- City
- Charlotte
Hi. I am glad I found this forum. My mother was diagnosed with ALS a little over a year ago. About 6 weeks ago she got a trach and has been in the hospital ever since. (the trach wasn't really something I personally thought was a good idea, however I digress) She is going to be coming home next week and I (along with everyone else in my family) are a nervous wreck. This past week we had to take classes at the hospital to learn how to take care of the trach as well as her. This is such a difficult time, I truly hope to find some understanding support here. I am not my mother's only caregiver, but I am one of them and I already feel overwhelmed. Even in the hospital helping her is overwhelming. Did anyone else feel this way?
Also another important question. My mother is to the point where she doesn't write well. And when you ask her questions (she understands you perfectly as a doctor came into the room just thursday and asked her questions and she responded correctly by squeezing his hand) she doesn't respond. How can I get her to respond? She will just lay there and either cry (which is HEARTBREAKING) or she won't respond, though she got your attention b/c she wanted something. It's really mentally and physically frustrating, more so for my dad. What can I do to help that?
Thank you in advance, and I look forward to getting to know you all and for the support. Sorry, I feel like I just poured my heart out
, I guess I'm just truly overwhelmed. I know it's more difficult for my mother, but I want to be strong for her and my family.
Also another important question. My mother is to the point where she doesn't write well. And when you ask her questions (she understands you perfectly as a doctor came into the room just thursday and asked her questions and she responded correctly by squeezing his hand) she doesn't respond. How can I get her to respond? She will just lay there and either cry (which is HEARTBREAKING) or she won't respond, though she got your attention b/c she wanted something. It's really mentally and physically frustrating, more so for my dad. What can I do to help that?
Thank you in advance, and I look forward to getting to know you all and for the support. Sorry, I feel like I just poured my heart out