- Mar 15, 2021
I am now a caregiver. My husband has bulbar ALS. I feel like I'm swimming in a pool of grief and it threatens to pull me under. I try not to cry in front of him. Today I stood in the basement and cried when I looked at all the foods on the pantry shelves that he can't eat anymore. It seems silly and trivial but still it upsets me. I'm grateful that he can still walk but I will never hear him speak again and we both feel so cheated because of it. He has a PEG and he is gaining back the ten pounds he lost. I keep trying to find some bright side but those are hard to find. Thank you for listening and I am grateful to have a place to talk.