- Sep 27, 2016
- Loved one DX
Hi my name isKristen and my dad was diagnosed with bulbar ALS on September 7th of this year. It's a new diagnosis for our family as we had previously thought he had myasthenia gravis but his symptoms have been getting progressively worse. Both my sister and I are speech therapists and I specialize in communication and swallowing disorders though I have mostly worked with stroke patients, Parkinson's disease, Alzheimer's and brain injury (i.e. Not ALS). This diagnosis is very new though with bulbar symptoms he is progressing quickly. This is my first experience as a caregiver/daughter first and therapist second. Needless to say we are heartbroken and devastated by this new diagnosis. We are not prepared to lose him.