Vonzuber
New member
- Joined
- Jul 14, 2011
- Messages
- 9
- Reason
- Learn about ALS
- Country
- US
- State
- CA
- City
- Moorpark
Greetings,
I am new to the forum, but am interested in learning more about ALS/MND. I am 54, and I have had progressive leg and arm weakness for almost two years. The fasciculations and cramps in my legs and arms has been increasing. I have had extreme fatigue for a long time and seems to be increasing. When I walk, my legs will stiffen and I become fatigued needing rest. I have had an MRI about 18 months ago showing nothing. Many blood tests indicating auto immune issues, but nothing specific. The EMG indicated nerve conductivity issues and possible Upper Motor Neuron Pathology. I have been to a sleep doctor to help with sleep, but the fasciculation issue is a problem. I use a sleep aid to stay a sleep, but still fatigued during the day. My Neurologist has a wait and see attitude saying, "Don't worry, you will be alright." However, I do not feel right. Is the wait and see path the only recourse?
Thanks,
Vonzuber
I am new to the forum, but am interested in learning more about ALS/MND. I am 54, and I have had progressive leg and arm weakness for almost two years. The fasciculations and cramps in my legs and arms has been increasing. I have had extreme fatigue for a long time and seems to be increasing. When I walk, my legs will stiffen and I become fatigued needing rest. I have had an MRI about 18 months ago showing nothing. Many blood tests indicating auto immune issues, but nothing specific. The EMG indicated nerve conductivity issues and possible Upper Motor Neuron Pathology. I have been to a sleep doctor to help with sleep, but the fasciculation issue is a problem. I use a sleep aid to stay a sleep, but still fatigued during the day. My Neurologist has a wait and see attitude saying, "Don't worry, you will be alright." However, I do not feel right. Is the wait and see path the only recourse?
Thanks,
Vonzuber