Tirona
New member
- Joined
- Sep 8, 2020
- Messages
- 5
- Reason
- DX MND
- Diagnosis
- 08/2020
- Country
- US
- State
- MA
- City
- Boston
Hello everybody,
I was diagnosed with ALS three weeks ago. I’m a male 47 yrs old who has always been very healthy. The worst health problem I have encountered in my life has been season flu once in every 6-7 years.
My symptoms started in Nov 2019. Stiffness in both calves and heavy legs when I was walking especially the tibialis anterior. By January 2020 I started to have ankle dorsiflexion problems and my gait was changed. After infinite blood tests, MRIs, EMGs and several doctors opinion, I received the final diagnoses ALS.
After spending the last weeks only worrying I decided to start dealing with ALS with courage and try to do my best to coop with this situation.
Finding this Forum and reading through it has been truly a game changer for me.
I want to thank all of you that participate here sharing your experiences and offering your support.
As of now I can walk slowly without assistance. I do feel I have balance problems when I’m standing. I feel safer when I walk though. No muscles atrophy yet in my legs. My weight is normal as before. I started Riluzole already.
I read many posts where planning ahead strongly suggested and I intend to do so.
Could someone offer me some details on what to consider purchasing or adapting?
Where do I go for equipment like rollator, wheelchair and other things I may need. Will my doctor suggest what I need and address me to the right place or I have to figure out on my own. I am totally unprepared for this and don’t know where to start.
Once again thank you for sharing your stories and offering support. I am glad I found you.
I was diagnosed with ALS three weeks ago. I’m a male 47 yrs old who has always been very healthy. The worst health problem I have encountered in my life has been season flu once in every 6-7 years.
My symptoms started in Nov 2019. Stiffness in both calves and heavy legs when I was walking especially the tibialis anterior. By January 2020 I started to have ankle dorsiflexion problems and my gait was changed. After infinite blood tests, MRIs, EMGs and several doctors opinion, I received the final diagnoses ALS.
After spending the last weeks only worrying I decided to start dealing with ALS with courage and try to do my best to coop with this situation.
Finding this Forum and reading through it has been truly a game changer for me.
I want to thank all of you that participate here sharing your experiences and offering your support.
As of now I can walk slowly without assistance. I do feel I have balance problems when I’m standing. I feel safer when I walk though. No muscles atrophy yet in my legs. My weight is normal as before. I started Riluzole already.
I read many posts where planning ahead strongly suggested and I intend to do so.
Could someone offer me some details on what to consider purchasing or adapting?
Where do I go for equipment like rollator, wheelchair and other things I may need. Will my doctor suggest what I need and address me to the right place or I have to figure out on my own. I am totally unprepared for this and don’t know where to start.
Once again thank you for sharing your stories and offering support. I am glad I found you.