ALSDestreza
New member
- Joined
- Dec 26, 2017
- Messages
- 4
- Reason
- PALS
- Diagnosis
- 12/2017
- Country
- US
- State
- CA
- City
- San Mateo
Hi folks,
I was diagnosed by a neurologist 12/2017 and go to see a second neurologist on 01/2018 who I'm told is an ALS expert. I'm in the "scared out of my mind" phase. I am looking for some sort of 'guidance" if such a thing exists. I was sort of horrified at how the first doc kind of left it as a "see ya later, sir." and really didn't provide any sort of next steps.
So I am here to say hello and hopefully discuss some things about diet and therapies that are helping us live better - longer. I know what's at the end but at 52 years old I don't believe I'm ready to just lay down quietly and die.8)
I was diagnosed by a neurologist 12/2017 and go to see a second neurologist on 01/2018 who I'm told is an ALS expert. I'm in the "scared out of my mind" phase. I am looking for some sort of 'guidance" if such a thing exists. I was sort of horrified at how the first doc kind of left it as a "see ya later, sir." and really didn't provide any sort of next steps.
So I am here to say hello and hopefully discuss some things about diet and therapies that are helping us live better - longer. I know what's at the end but at 52 years old I don't believe I'm ready to just lay down quietly and die.8)