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Nene

Member
Joined
Nov 12, 2007
Messages
16
Reason
PALS
Diagnosis
10/2007
Country
AUS
State
queensland
City
cairns
:?Hi all I was diagnosed in October I am 46 have 3 daughters I am still trying to come to terms with mnd but I'm doing ok.
 

liz

Senior member
Joined
Nov 9, 2006
Messages
642
Reason
PALS
Diagnosis
11/2006
Country
US
State
NY
City
Albany
Welcome

Hi Jenene -

I'm 44 and have 2 boys and 2 girls. I was diagnosed this time last year. I find it has gotten easier (mentally coping) and harder (physical challenges) at the same time. Welcome to the forum.

Liz
 

CindyM

Moderator emeritus
Joined
Sep 17, 2006
Messages
3,543
Reason
Learn about ALS
Country
US
State
New England
City
Anytown
Hello and welcome to the forum. Sorry to hear about your DX. folks areound here are very supportive and willing to discuss any issue that comes up for you, so I hope you feel free to visit often. Cindy
 

Nene

Member
Joined
Nov 12, 2007
Messages
16
Reason
PALS
Diagnosis
10/2007
Country
AUS
State
queensland
City
cairns
it is hard

Some days I feel o.k. other days I get so down my girls r finding it very hard to deal with and my husband cries often. So far I just have slight balance problem, speech slurring, and am very slow when I eat. I have just started taking ritulen and I try and stay active walking and swimming
 

liz

Senior member
Joined
Nov 9, 2006
Messages
642
Reason
PALS
Diagnosis
11/2006
Country
US
State
NY
City
Albany
Jenene -

Yep, it is hard. After that initial shock, I feel that having to think of my kids has helped me to keep me on a more even keel. How old are your girls?

Liz
 

Nene

Member
Joined
Nov 12, 2007
Messages
16
Reason
PALS
Diagnosis
10/2007
Country
AUS
State
queensland
City
cairns
it is hard

Hi Liz, my eldest is 22 and I have twins who r 21. My eldest is 2 months pregnaant she is finding it very difficult to come to terms with. I am very close to all none live at home but all live close by, and you what do you have and how old
 

Icanmanz

Senior member
Joined
Jul 14, 2007
Messages
947
Reason
PALS
Country
Uni
State
Texas
City
Tomball
God bless you, and your family, jene. I will keep each one of you in my prayers. I can imagine what you folks are experiencing right now. Every time I read about an Als diagnosed, it shakes me up. May God bless each one of our Pals, and our courageous fighters that have departed, may they rest in peace. I have no doubt in my mind that our Heavenly Father has a special place for them in Heaven. Als forever changed our lives, and robbed us of our joy.

Irma
 

KCAL

New member
Joined
Oct 29, 2007
Messages
1
Country
AUS
State
Queensland
City
Roma
I'm going to drop you an email seeing we're in the same state/country, you will find so much fantastic support here, something I'm yet to find in Oz.

KCAL:-D
 
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