oneof6
New member
- Joined
- Jul 21, 2008
- Messages
- 0
- Reason
- Loved one DX
- Country
- US
- State
- Maryland
- City
- Baltimore
Afternoon everyone,
My name is Steve.
On July 15,2002 we lost my brother Chris to als. Chris was 1 month shy of his 41st birthday. Needless to say, it was a very difficult time for him, his family and friends.
Both of our parents are alive and it was nearly unbearable watching them watch one of their 6 kids die. As difficult as it seemed at that time, we've all pushed on and as Chris wanted we all share in the lives of his children. He had a son now 14 and a daughter now 24. His daughter had a beautiful baby girl about 10 months ago. I can say that I think we've all learned to better live for each and everyday.
Here's the bad part...
We learned Saturday that our youngest brother Timmy most likely has developed als.
Timmy is 41. He has 2 kids 18 & 15. He hasn't not been officially diagnosed. My father is a physician and he is 99.99% certain.
I simply do not know how in the hell we are going to do this all again. I know we will and eventually that terrible day will once again come to my family.
I suppose there are the inevitable questions..
Do I have the bad gene?
Did I pass it along to my son and daughter?
Did they now pass it along to my grandchildren?
This is an absoultely "#@$&^&*-up" disease!
My name is Steve.
On July 15,2002 we lost my brother Chris to als. Chris was 1 month shy of his 41st birthday. Needless to say, it was a very difficult time for him, his family and friends.
Both of our parents are alive and it was nearly unbearable watching them watch one of their 6 kids die. As difficult as it seemed at that time, we've all pushed on and as Chris wanted we all share in the lives of his children. He had a son now 14 and a daughter now 24. His daughter had a beautiful baby girl about 10 months ago. I can say that I think we've all learned to better live for each and everyday.
Here's the bad part...
We learned Saturday that our youngest brother Timmy most likely has developed als.
Timmy is 41. He has 2 kids 18 & 15. He hasn't not been officially diagnosed. My father is a physician and he is 99.99% certain.
I simply do not know how in the hell we are going to do this all again. I know we will and eventually that terrible day will once again come to my family.
I suppose there are the inevitable questions..
Do I have the bad gene?
Did I pass it along to my son and daughter?
Did they now pass it along to my grandchildren?
This is an absoultely "#@$&^&*-up" disease!
